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Post by nikkilove on Apr 8, 2013 0:03:41 GMT
Hey I'm a fellow sufferer from Richmond Va. I've been suffering from fbo for around7 yrs now. I'm 28 going to be 29 in a wk. Its been hell for me . I'm just trying to find some like minded people that suffer from the same thing I do. I'd love to meet friends and maybe more one day ;D. I'm trying to find my place in the world with this condition. I'm hoping coming to forums like this will give me some advice and some much needed support. Its hard being the only person you know with a condition like this. I just hope to make friends so I'm putting myself out there which I don't normally do because I'm shy .
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malisha
Junior Member
Cheering 4 Oneself
Posts: 68
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Post by malisha on May 27, 2013 22:25:35 GMT
Hello Nikkilove I just found this site.It's a pleasure to meet you.I've been on many other sites,but never this one.Happy BirthDay to you. Although it may not feel like a happy one do know that you're still loved. I know how hard this must be for you. I too have been dealing with this all my life.I reside in Rich,Va as well.I'm 38 yrs old with four children and 3+ grandchildren whom I love alot.Although i have my family it's my other family who treats me like crap justlike strangers do because of something they don't understand.With being this way doesn't mean that you won't ever have a moment of peace.That happiness. It's these simple things in life that we some time have to create for ourselves.I'm not sure if what I have is Trimethylaminuria/Malodour Syndrome or something else,but I do know that every doctor I've been to says that I'm very clean.Still they have no answer for me.There's so many unexplained medical mysteries out here in this big world that alot of people just don't know about including the professionals whom we trust with our overall health.Yes even they the doctors never heard of this condition.I remember when I first put a name to this condition which I believe I and many others out their suffer from.I'm a true believer in God and Jesus Christ the son who died on the cross for you and I as well as the world. This is what gets me through all of the name calling, the gossip, the threats,the humility and the down right in human of others to not have compassion for what others maybe going through.It's these things that makes me so much stronger.Instead of feeling like you don't matter get angry. >:(Tell yourself that you're not going to just give up.That you're not going to let this disease control your life or the people who wants us to stay hidden away.I know this sounds easier written down on paper.You must always dream and with that dream comes a plan which you initially carry out the order.I'm not saying you won't feel this emotional pain because it's there,I'm saying when you feel as though you can't go on remember to pick yourself back up.Encourage yourself with words and tell yourself JESUSLOVESME2 :DWithout any prejudice.Love to meet one day if you feel comfortable after we get to know eachother.I'm what you call concern person for anyone who feels life pain just as I do.If we ever me I will except you wholeheartidly.Forgive me if I misspelled anything.
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