How bad that odor can be?

[demirbence]

Most of us, I guess, cannot smell our BO unless in very rare and extreme situations. Probably we got used to that constant smell, therefore are not able to realize how bad it must be to others who are mocking us! Interestingly, I thought myself as a smell-sensitive person -recognising them easily!!

I've been suffering this mockery for over 15 years, but it was not as bad as my recent periods. I don't understand how that odor travels outside the flat and reach to the common hallway in the apartment! If the problem is about sweating, that shouldn't be. Or my breath fills in the rooms (as I rarely go outside in order to escape from those angry mob there) and it must be so bad that it makes an effect of a sewage inside the house

To clarify, for most of these 15 years beginning in my 18th age, I have to stay in communal accommodations like dormitories. In the first 10 years, I was also smoking heavily. If I was alone, I used to smoke inside and think that generally people was irritated because of that smoke odor. I wasn't shiting myself or constantly breaking wind, so the only logical explanation seemed that.

But my experiences in private living areas (apartments) has been also conflictual: People commenting, laughing, swearing loudly while passing in front of my door. I reject my being paranoid, since these have been repeated in very diverse circumstances. I regularly vent the whole rooms, even in the freezing winter colds for long times. I am not smoking for years, and I rarely cook. I try to let windows open quite often. I use air fresheners a lot, even expensive parfumes, especially in the toilet. I put soap or naphthaline around to mask any possible unpleasant odor. I spend a great deal for detergents and cleaners like domestos.

I am really asking you how that phenomenon is possible? How cannot I smell or be aware of such a bad odor? I accept that I cannot smell myself when I am out, for instance in an office or transport. But I cannot understand how on earth that smell fills the rooms and gets over the barriers! I escape from people but could not find peace alone even in my home. I have to be on alert even in my private place. I should have found a cave in the forest or an island in the middle of nowhere.

What disgusts me is that they -the monsters- are most likely thinking that I shit myself or piss my bed, or collect rubbish in my flat, love cooking with smelly things, something like that. All my effort -real effort consuming most of my time, energy, power & resources- is just futile. That guy will always enjoys the joy of being normal and ordinary, just as effortless as any of them can be!

[Peter_]

I seem to be more 'lucky' then most TMAU sufferers cause I can smell myself if my TMAU odor is realy bad. And it's not a pretty thing to smell yourself when you smell of shit or just smell badly. It's for going crazy!! So I can easily understand people why they are agresive if they smell you constantly, every single f..kin day.
I had alot of understanding from people arround me in my family, my job and frankly I wonder how can they put up eith me as they do but I can hardly put up with myself when my smell is at its worste.
If you smell yourself then you can be sure others smell you much more and trust me, It's not easy.

[mona]

Today was hard for me. I found a treatment for the fbo that helps but I still have a lot of bugs to work out.

I'm not working and it costs money to buy the thing I need (I use antibiotics after meals and take l-arginine and l-ornithine)


Anyways I'm doing labor for the city's clean up program to help me pay off a ticket. It was cold all day so I didn't sweat at all,and in the morning people were polite to me (despite me being able to tell I still smelled a little, as a cause of being on limited rations of antibiotics I should be taking more but I can't afford that right now)


But as the day progressed and the more I inhaled and exhaled, the more people began to avoid me and walk far away from me.

It was very hard and disappointing.

I'm already enagaged and happy so I wasn't sad over not being attractive to others I was feeling down about not being able to make friends and conversate with people. It's just sad how isolated we are.

Aanyways the worst part was random people would start a conversation just to find out how many days of mandatory clean up service I have left. Sorta to gage how many more days they will be stuck with the "stinky person "

Not cool at all.
People I know don't think they are being mean when they act how they do, but u are being mean when u ask how long I have til my service ends and then u end the conversation.
As if I am not able to see through that.

My only choices are....
Up the antibiotic intake or be semi-smelly.

Choices, choices..

[mona]

You would think people would just mind their own business.

I know if my odor invades their space it is their business but in that case they should simply bring some sort of odor blocking stuff for their nose the type of thing the cops rub under their noses at the morgue

I know it sounds selfish but I mean if it's something u gotta deal with might as well come prepared.

Instead of asking how long until u are rid of me.

I'm so disappointed

[malisha]

Jan 12, 2013 23:23:29 GMT demirbence said:

Most of us, I guess, cannot smell our BO unless in very rare and extreme situations. Probably we got used to that constant smell, therefore are not able to realize how bad it must be to others who are mocking us! Interestingly, I thought myself as a smell-sensitive person -recognising them easily!!

I've been suffering this mockery for over 15 years, but it was not as bad as my recent periods. I don't understand how that odor travels outside the flat and reach to the common hallway in the apartment! If the problem is about sweating, that shouldn't be. Or my breath fills in the rooms (as I rarely go outside in order to escape from those angry mob there) and it must be so bad that it makes an effect of a sewage inside the house

To clarify, for most of these 15 years beginning in my 18th age, I have to stay in communal accommodations like dormitories. In the first 10 years, I was also smoking heavily. If I was alone, I used to smoke inside and think that generally people was irritated because of that smoke odor. I wasn't shiting myself or constantly breaking wind, so the only logical explanation seemed that.

But my experiences in private living areas (apartments) has been also conflictual: People commenting, laughing, swearing loudly while passing in front of my door. I reject my being paranoid, since these have been repeated in very diverse circumstances. I regularly vent the whole rooms, even in the freezing winter colds for long times. I am not smoking for years, and I rarely cook. I try to let windows open quite often. I use air fresheners a lot, even expensive parfumes, especially in the toilet. I put soap or naphthaline around to mask any possible unpleasant odor. I spend a great deal for detergents and cleaners like domestos.

I am really asking you how that phenomenon is possible? How cannot I smell or be aware of such a bad odor? I accept that I cannot smell myself when I am out, for instance in an office or transport. But I cannot understand how on earth that smell fills the rooms and gets over the barriers! I escape from people but could not find peace alone even in my home. I have to be on alert even in my private place. I should have found a cave in the forest or an island in the middle of nowhere.

What disgusts me is that they -the monsters- are most likely thinking that I shit myself or piss my bed, or collect rubbish in my flat, love cooking with smelly things, something like that. All my effort -real effort consuming most of my time, energy, power & resources- is just futile. That guy will always enjoys the joy of being normal and ordinary, just as effortless as any of them can be!

Sept 17, 2014 20:59:17 GMT Peter_ said:

I seem to be more 'lucky' then most TMAU sufferers cause I can smell myself if my TMAU odor is realy bad. And it's not a pretty thing to smell yourself when you smell of shit or just smell badly. It's for going crazy!! So I can easily understand people why they are agresive if they smell you constantly, every single f..kin day.
I had alot of understanding from people arround me in my family, my job and frankly I wonder how can they put up eith me as they do but I can hardly put up with myself when my smell is at its worste.
If you smell yourself then you can be sure others smell you much more and trust me, It's not easy.

Dec 16, 2014 0:12:24 GMT mona said:

Today was hard for me. I found a treatment for the fbo that helps but I still have a lot of bugs to work out.

I'm not working and it costs money to buy the thing I need (I use antibiotics after meals and take l-arginine and l-ornithine)


Anyways I'm doing labor for the city's clean up program to help me pay off a ticket. It was cold all day so I didn't sweat at all,and in the morning people were polite to me (despite me being able to tell I still smelled a little, as a cause of being on limited rations of antibiotics I should be taking more but I can't afford that right now)


But as the day progressed and the more I inhaled and exhaled, the more people began to avoid me and walk far away from me.

It was very hard and disappointing.

I'm already enagaged and happy so I wasn't sad over not being attractive to others I was feeling down about not being able to make friends and conversate with people. It's just sad how isolated we are.

Aanyways the worst part was random people would start a conversation just to find out how many days of mandatory clean up service I have left. Sorta to gage how many more days they will be stuck with the "stinky person "

Not cool at all.
People I know don't think they are being mean when they act how they do, but u are being mean when u ask how long I have til my service ends and then u end the conversation.
As if I am not able to see through that.

My only choices are....
Up the antibiotic intake or be semi-smelly.

Choices, choices..

Dec 16, 2014 0:16:32 GMT mona said:

You would think people would just mind their own business.

I know if my odor invades their space it is their business but in that case they should simply bring some sort of odor blocking stuff for their nose the type of thing the cops rub under their noses at the morgue

I know it sounds selfish but I mean if it's something u gotta deal with might as well come prepared.

Instead of asking how long until u are rid of me.

I'm so disappointed

Hey Mona I just read your post.I felt aww for you. I agree with you about people being mean and not knowing it.
I feel your pain. It's kinda hard to just ignore the looks,stare,hatred that people give you because of your condition.
To demirbence and peter I too feel your pain and what you're going through.I wish this condition on not a single person.
This to me is more debilitating then my diabetes. I continue to go on with my daily routine.I don't know what else to do.
I hope that we as the community of BO sufferers would reach to the White House and get some recognition for this rare
disease.So that we can have this pass by law as a disability and make it so the entire world can learn to understand and
get knowledge from it.This is what I'm still hoping for. Everyone keep fighting and keep living!

[mona]

malisha
Hey I took and antibiotic in the morning and it helped some, unfortunately that same morning I started my period and the help antibiotics usually provide was very minimal this day because of the period. I even smelled a faint poop smell in the van we were all inside of, even after we all got out of it and gone back inside it 30-40 minutes later. On the second occasion it didnt smell like poop but i did notice some of our "passengers" were missing and thought perhaps the odor came from someone else as in maybe someone had stepped into poop and tracked it into the van but then the van would have smelled all day since the floor was carpeted. I had no choice but accept that more than likely this smell originated from myself. But no biggie. It just confirmed me to that I needed some additional reinforcements.

Anways, sonce I had no idea if the smell came from me or not, I decided I needed to stop going to my community service until I could better work out the situation.

So in present time I'm trying to plan out how I can work from home to earn more money for the things I need and also be able to pay my bills and finance my little "body odor experiments" ;-)

I'm thinking on publishing a blog in the meantime to keep me busy.

Hope you had a great christmas! God bless !

-Mona

[malisha]

Dec 26, 2014 17:10:58 GMT mona said:

malisha
Hey I took and antibiotic in the morning and it helped some, unfortunately that same morning I started my period and the help antibiotics usually provide was very minimal this day because of the period. I even smelled a faint poop smell in the van we were all inside of, even after we all got out of it and gone back inside it 30-40 minutes later. On the second occasion it didnt smell like poop but i did notice some of our "passengers" were missing and thought perhaps the odor came from someone else as in maybe someone had stepped into poop and tracked it into the van but then the van would have smelled all day since the floor was carpeted. I had no choice but accept that more than likely this smell originated from myself. But no biggie. It just confirmed me to that I needed some additional reinforcements.

Anways, sonce I had no idea if the smell came from me or not, I decided I needed to stop going to my community service until I could better work out the situation.

So in present time I'm trying to plan out how I can work from home to earn more money for the things I need and also be able to pay my bills and finance my little "body odor experiments" ;-)

I'm thinking on publishing a blog in the meantime to keep me busy.

Hope you had a great christmas! God bless !

-Mona

Thanks Mona I had a great Christmas! How was your Christmas? I just finished reading your post.
I'm glad you continue to fight for you and not give up.When it comes to our health,I think we all
should put ourselves first.By the way have you heard of freelance writing. I've came across the term
before in the past.Won't you think about writing/starting a blog and get paid for it.Just google freelance
blogger jobs.I hope this helps.Talk to you another time. May God Bless you!

[mona]

Wow, malisha
I have heard of freelance writing but never knew you could get payed for it!
Being someone with Bo AND Bad breath AND someone who smells basically all the time no matter what I was doing:
i.e. -
if I have a bowel movement the smell would linger for hours.
if I went pee, a smell would linger in the bathroom for a good 8 minutes (smells fishy to me sometimes and no its not a yeast infection, its my pee that smells like that)
if I BREATHE, an odor is produced!
and since we all need to breathe to live, i seem to always produce a smell.

even when I take the antibiotics, there is nothing that stops the breathing smell.

ONCE the breathing smell died down when i used saline mixed with baking soda to rinse my sinuses but then this solution stopped working 2 days after.
This is what always happens with the nose smell or breathing smell.Anyways the point I was trying to make is that when u are always smelly, NO ONE EVEN BOTHERS to tell you stuff like that. They all just assume SOMEONE already told you about it. blahhhhhh thats totally false but i digress.

but yeah im still battling it out.

I will look into the freelance thing since I have always wanted to be a writer. Hope all is well with u :-)

[kimkim15]

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