Post by Steve Chaunce on Nov 23, 2012 19:33:36 GMT
Hello,
This is my first time posting, but I feel I need to share my story. I
was diagnosed with crohn's disease in december of 2009 after being
hospitalized for inflammation in my small intestine. I was put on a
strong regimen of Prednisone (a corticosteroid) for about 4 months,
which caused me to develop some absolutely horrible acne, but otherwise
I was seemingly "coping" with the crohn's (with few dietary changes)
until january of 2011, when I began to exhibit signs of "secondary"
trimethylaminuria -- the tell-tale "dead fish" odor. This lasted for
about 3 months before I really realized and admitted to myself what was
happening (and once friends' snide, backhanded remarks started to piece
together for me. Bear in mind, I go to a pretentious ivy league school,
so this was not a pleasant experience.)
I researched a lot of different potential diets, the first one that
offered any help at all was an "anti-candida" diet. This manly consisted
of eliminating all carbs (grains, sugar) except for some non-starchy
veggies. It helped, but was not a cure-all, and I continued to have
difficulties throughout the year, much to my exasperation (my odor
shifted, to a more "fecal" one). Finally I stumbled across the
"paleolithic" diet (http://en.wikipedia.org/wiki/Paleolithic_diet ),
which is essentially the candida diet /plus/ strictly no dairy or
gluten, and I'm happy to say that as long as I keep to it (and don't
over-indulge on sugary fruits) I am 100% odor free. I occasionally do
slip up (especially with the no-dairy, no-gluten part, which is very
hard to do when eating out or travelling), and pay the price for about a
week, but am always able to return to an odor free state.
I have many thoughts on the physiology of this horrible affliction (i'm
certain it has to do with the composition of the bacteria living in your
gut, but my experience was that probiotics don't help. You need to
change what you're feeding the bacteria, and after a week or so the
smelly ones die off and the healthy ones recover). But maybe i'll leave
that for another post. I just wanted to see if anyone here had a similar
experience. I want to re-iterate the general sentiment on this forum--I
feel for you all from the bottom of my heart, this is not an easy
disease to cope with and the public is so damn judgmental and unwilling
to understand. I have faith that soon we'll have a better idea as to its
causes and cures. Warm regards,
Steven
This is my first time posting, but I feel I need to share my story. I
was diagnosed with crohn's disease in december of 2009 after being
hospitalized for inflammation in my small intestine. I was put on a
strong regimen of Prednisone (a corticosteroid) for about 4 months,
which caused me to develop some absolutely horrible acne, but otherwise
I was seemingly "coping" with the crohn's (with few dietary changes)
until january of 2011, when I began to exhibit signs of "secondary"
trimethylaminuria -- the tell-tale "dead fish" odor. This lasted for
about 3 months before I really realized and admitted to myself what was
happening (and once friends' snide, backhanded remarks started to piece
together for me. Bear in mind, I go to a pretentious ivy league school,
so this was not a pleasant experience.)
I researched a lot of different potential diets, the first one that
offered any help at all was an "anti-candida" diet. This manly consisted
of eliminating all carbs (grains, sugar) except for some non-starchy
veggies. It helped, but was not a cure-all, and I continued to have
difficulties throughout the year, much to my exasperation (my odor
shifted, to a more "fecal" one). Finally I stumbled across the
"paleolithic" diet (http://en.wikipedia.org/wiki/Paleolithic_diet ),
which is essentially the candida diet /plus/ strictly no dairy or
gluten, and I'm happy to say that as long as I keep to it (and don't
over-indulge on sugary fruits) I am 100% odor free. I occasionally do
slip up (especially with the no-dairy, no-gluten part, which is very
hard to do when eating out or travelling), and pay the price for about a
week, but am always able to return to an odor free state.
I have many thoughts on the physiology of this horrible affliction (i'm
certain it has to do with the composition of the bacteria living in your
gut, but my experience was that probiotics don't help. You need to
change what you're feeding the bacteria, and after a week or so the
smelly ones die off and the healthy ones recover). But maybe i'll leave
that for another post. I just wanted to see if anyone here had a similar
experience. I want to re-iterate the general sentiment on this forum--I
feel for you all from the bottom of my heart, this is not an easy
disease to cope with and the public is so damn judgmental and unwilling
to understand. I have faith that soon we'll have a better idea as to its
causes and cures. Warm regards,
Steven