Post by gabby on Jul 13, 2011 0:59:26 GMT
Hi, Gabby here from the other site.
40's, female, collecting SSDI.
Comments have included Skunk,death, something crawled out of a lake and died, musty, sour, flax seed can cause fishy smell, shit/poop, urine, monkey, burning plastic or rubber, smoke, feet, shoes, chemical / acetone, garbage, sewer, rarely fish. Smelly cat its not your fault, dirty fat women, she is lying, she can smell it. When I ask, stomp away, everyone drop head get quiet and pound away on IM, or just fake cough and giggle.
went to HR and my boss, said I was being too sensitive. It is a tough group to work with, put headphones on and ignore. She does not smell anything (same with HR) would talk to my Dr if she did.
Shower am, wash up at breaks, change socks/shoes/clothes at lunch, carry deodarant. When I would come back to cube would be sprayed with perfume/spray? Or fart spray. Showering 2-3 times a day.
Doctors: primary regularly, ENT, endocrinologist, 3 podiatrists, GYN, 3 neurologists, anisthesiologist, chiropractor, masseuse, Chinese herbalist, acupuncturist, gastroenterologist, urologist, allergist, 4 geneticists, 29 times in one year. No one smells anything.
Hear coworkers talking about what I'm wearing every day, go to stores and employees point and stare, fake cough when walk by. Young kids employees follow and take pics, same in park people pull over and take pics or loud fake coughs and stare as I go by. Coworkers / boss make comments about what I did ate etc. The day before/weekend. Also bring up what I discuss in therapy? (Smith)
Heard about TMAU in August 2009 and asked primary for a referral. Spent 3 hours with geneticists in small room straight from work - smell nothing. Had 4 pages of harassment, doctors, products and hygiene habits, is the only reason they would test. Came back positive even though the samples were shipped wrong! (not frozen in glass, causes loss of TMA and possible false negative)
Primary referred to psychiatrist for depression, intern kept cutting me off with 'just tell me your symptoms!' And wrote me up as paraanoid and hallucinating, and of course smells nothing. Primary agrees with this diagnosis even after TMAU diagnosis.
Lost my job in January 2010 for 'false accusations against coworkers.' 4 weeks of outpatient therapy no one smells anything. Psychologist says it is delusions caused by unresolved childhood issues (aaaaahaha) Cannot even get an interview for any job. May 2010 file for disability per psychiatrist and neurologist.
Currently shower evening and morning and/or before leaving the house. Use lactacyd, exfoliating wash and lactacyd again, head to toe with scrub brush. scrub skin raw. Same dental, pedi once a week, low ph shampoo conditioner deodarant lotions. Laxative/dairy as needed, enemas night before/fast if going somewhere for any length of time.
Wash clothes in enzymatic cleaner and first rinse with white vinegar.
Take copper chlorophyl, charcoal, antibiotics, probiotics, acidopholus, liquid c, aloe vera juice, b2 and folic acid with meals, spirulina, cinnamon, lemon cranberry juice. Detox tea.
Still get the surprised look of realization when meeting people and comments about needing to bathe regularly or smelling but avoidance/denial when confronted.
A member of support group do not think medical community should have to be honest with us, we should just 'assume' we smell and focus on what we can do about it. Also think the public should not have to deal with us...why lock myself up for the rest of my life when they don't?
Anyway, I foster dogs for a rescue group, am looking to relocate in the next year or so, spend my days by the pool drinking margeritas lol.
apologies for spelling/grAmmar, I'll clean this up when I get on the computer sometime.
40's, female, collecting SSDI.
Comments have included Skunk,death, something crawled out of a lake and died, musty, sour, flax seed can cause fishy smell, shit/poop, urine, monkey, burning plastic or rubber, smoke, feet, shoes, chemical / acetone, garbage, sewer, rarely fish. Smelly cat its not your fault, dirty fat women, she is lying, she can smell it. When I ask, stomp away, everyone drop head get quiet and pound away on IM, or just fake cough and giggle.
went to HR and my boss, said I was being too sensitive. It is a tough group to work with, put headphones on and ignore. She does not smell anything (same with HR) would talk to my Dr if she did.
Shower am, wash up at breaks, change socks/shoes/clothes at lunch, carry deodarant. When I would come back to cube would be sprayed with perfume/spray? Or fart spray. Showering 2-3 times a day.
Doctors: primary regularly, ENT, endocrinologist, 3 podiatrists, GYN, 3 neurologists, anisthesiologist, chiropractor, masseuse, Chinese herbalist, acupuncturist, gastroenterologist, urologist, allergist, 4 geneticists, 29 times in one year. No one smells anything.
Hear coworkers talking about what I'm wearing every day, go to stores and employees point and stare, fake cough when walk by. Young kids employees follow and take pics, same in park people pull over and take pics or loud fake coughs and stare as I go by. Coworkers / boss make comments about what I did ate etc. The day before/weekend. Also bring up what I discuss in therapy? (Smith)
Heard about TMAU in August 2009 and asked primary for a referral. Spent 3 hours with geneticists in small room straight from work - smell nothing. Had 4 pages of harassment, doctors, products and hygiene habits, is the only reason they would test. Came back positive even though the samples were shipped wrong! (not frozen in glass, causes loss of TMA and possible false negative)
Primary referred to psychiatrist for depression, intern kept cutting me off with 'just tell me your symptoms!' And wrote me up as paraanoid and hallucinating, and of course smells nothing. Primary agrees with this diagnosis even after TMAU diagnosis.
Lost my job in January 2010 for 'false accusations against coworkers.' 4 weeks of outpatient therapy no one smells anything. Psychologist says it is delusions caused by unresolved childhood issues (aaaaahaha) Cannot even get an interview for any job. May 2010 file for disability per psychiatrist and neurologist.
Currently shower evening and morning and/or before leaving the house. Use lactacyd, exfoliating wash and lactacyd again, head to toe with scrub brush. scrub skin raw. Same dental, pedi once a week, low ph shampoo conditioner deodarant lotions. Laxative/dairy as needed, enemas night before/fast if going somewhere for any length of time.
Wash clothes in enzymatic cleaner and first rinse with white vinegar.
Take copper chlorophyl, charcoal, antibiotics, probiotics, acidopholus, liquid c, aloe vera juice, b2 and folic acid with meals, spirulina, cinnamon, lemon cranberry juice. Detox tea.
Still get the surprised look of realization when meeting people and comments about needing to bathe regularly or smelling but avoidance/denial when confronted.
A member of support group do not think medical community should have to be honest with us, we should just 'assume' we smell and focus on what we can do about it. Also think the public should not have to deal with us...why lock myself up for the rest of my life when they don't?
Anyway, I foster dogs for a rescue group, am looking to relocate in the next year or so, spend my days by the pool drinking margeritas lol.
apologies for spelling/grAmmar, I'll clean this up when I get on the computer sometime.