Post by dolittle on Nov 21, 2011 23:48:07 GMT
I'm 24, always had pain, bloating and noisy digestion. 4 years ago, FBO started(I can't smell almost always, but it must be really strong judging by the reactions of others). Life has slowly fallen apart since.
I have stopped talking to any of my old friends, because I felt really hurt that they we were still making comments...even after I tried to explain to them.
There has been no diagnosis attached to this symptom so far.
Had sigmoidoscopy, blood tests, celiac test, been on rifaximin (I think i may have SIBO...but it did nothing). Smell seems worse for a day or 2 after I eat fish. Constipation also makes smell worse. Having a well formed bowel movement followed by shower seems to give me a few hrs odour free.
Current management revolves around 2-3 shower per day, low FODMAP diet, daily exercise, self hypnosis (to encourage me to exercise and to stick to the diet), psyllium, nullo+ devrom +activated charcoal. I also listen to music with earphones pretty much all the time I am outside of my room, so I can't hear the horrible things ppl say.
My GP referred me to a Gastroenterologist. They both seem to be focussing mainly on depression, but I feel this is secondary to the FBO rather than the cause.
My plans for the future are to get a TMAU test, hydrogen breath test & full colonoscopy (latter 2 promised to me by GI doc if antidepressants did nothing...actually they have made "IBS" symptoms worse, lol)
My working diagnosis is some kind of enzyme deficiency (maybe TMAU or a similar condition to TMAU that has not yet been described scientifically) secondary to SIBO. I think anyway The main issue seems to be incomplete evacuation and/or leaky gas.
I have always defined myself by my career, and since this problem has started, my dreams and aspirations have been crushed. I used to give lectures, I have published research, I was confident and hard working. The transformation has been rapid- into an angry, bitter loner who hardly ever leaves his room and has been very close to scuicide a few times. This condition has taken over my life and constantly trawl the net in hopes of a cure. The worst thing for me is that I have got this idea in my head that I am going to die alone, and things can easily seem hopeless
I have stopped talking to any of my old friends, because I felt really hurt that they we were still making comments...even after I tried to explain to them.
There has been no diagnosis attached to this symptom so far.
Had sigmoidoscopy, blood tests, celiac test, been on rifaximin (I think i may have SIBO...but it did nothing). Smell seems worse for a day or 2 after I eat fish. Constipation also makes smell worse. Having a well formed bowel movement followed by shower seems to give me a few hrs odour free.
Current management revolves around 2-3 shower per day, low FODMAP diet, daily exercise, self hypnosis (to encourage me to exercise and to stick to the diet), psyllium, nullo+ devrom +activated charcoal. I also listen to music with earphones pretty much all the time I am outside of my room, so I can't hear the horrible things ppl say.
My GP referred me to a Gastroenterologist. They both seem to be focussing mainly on depression, but I feel this is secondary to the FBO rather than the cause.
My plans for the future are to get a TMAU test, hydrogen breath test & full colonoscopy (latter 2 promised to me by GI doc if antidepressants did nothing...actually they have made "IBS" symptoms worse, lol)
My working diagnosis is some kind of enzyme deficiency (maybe TMAU or a similar condition to TMAU that has not yet been described scientifically) secondary to SIBO. I think anyway The main issue seems to be incomplete evacuation and/or leaky gas.
I have always defined myself by my career, and since this problem has started, my dreams and aspirations have been crushed. I used to give lectures, I have published research, I was confident and hard working. The transformation has been rapid- into an angry, bitter loner who hardly ever leaves his room and has been very close to scuicide a few times. This condition has taken over my life and constantly trawl the net in hopes of a cure. The worst thing for me is that I have got this idea in my head that I am going to die alone, and things can easily seem hopeless