Post by malory on Oct 27, 2011 18:06:45 GMT
I don't want to scaremonger but I'm seriously worried about the fact that tmau sufferers are given a sheet with a list of low choline foods which we try to follow and, for those of us whose odour is stubborn, we end up eliminating virtually everything to the extent that we could cause ourselves damage later on in life.
I read an article by the UK's Duchess Camilla which explained that people following restricted diets can start off the beginnings of osteoporosis. Her mother died of osteoporosis. I didn't realise this disease was potentially lethal! Her poor mum had osteoporosis so badly that she was too bent over to eat or even breathe properly. She died in agony. Camilla was upset by the ignorance and dismissiveness of some of the doctors she dealt with so she has started to raise awareness of the importance of a balanced diet to avoid this condition.
I imagine/hope everyone takes calcium supplements already (UK people need to try and get these on prescription i think) but I would still urge people to not restrict their diets too much. My chiropractor advised me to take fish oil, even if it worsened my odour, as he thought I was lacking in these. I have been taking Higher Nature Organic hemp seed oil for a week (not brave enough for fish oil yet) as I am off work. I feel much better for it. It makes sense; if we don't give our bodies the fuel they need to work properly then many processes and functions will be jeopardized as a result.
Even if we find an improvement in odour with a restricted diet, I don't think it is good to restrict our food intake excessively. Taking supplements may not even guarantee our health; some vitamins/minerals can be difficult to absorb in tablet form, I think. I know it is hard to absorb iron unless you take vitamin C simultaneously, for example. I don't think we should simply accept this diet protocol. we should be getting signatures on that MEBO RESEARCH PETITION to ensure our views get heard and research gets done. I can just imagine a teenager with tmau restricting their diet to 3 or 4 foods on that diet sheet and doing harm to their bodies in the long term. I know that women who opt for hysterectomy (to decrease their odour at menstruation time) also increase their chances of developing osteoporosis.
I've said it before and I'll say it again: THE TREATMENT PROTOCOL FOR TMAU IS INADEQUATE AND POTENTIALLY HARMFUL. WE MUST DO SOMETHING ABOUT IT!
Before diagnosis a year ago, I was healthy but smelly. Now I am unhealthy and smelly. Be careful everyone with following diets. Our health is a gift and tmau should not get in the way of that.
I read an article by the UK's Duchess Camilla which explained that people following restricted diets can start off the beginnings of osteoporosis. Her mother died of osteoporosis. I didn't realise this disease was potentially lethal! Her poor mum had osteoporosis so badly that she was too bent over to eat or even breathe properly. She died in agony. Camilla was upset by the ignorance and dismissiveness of some of the doctors she dealt with so she has started to raise awareness of the importance of a balanced diet to avoid this condition.
I imagine/hope everyone takes calcium supplements already (UK people need to try and get these on prescription i think) but I would still urge people to not restrict their diets too much. My chiropractor advised me to take fish oil, even if it worsened my odour, as he thought I was lacking in these. I have been taking Higher Nature Organic hemp seed oil for a week (not brave enough for fish oil yet) as I am off work. I feel much better for it. It makes sense; if we don't give our bodies the fuel they need to work properly then many processes and functions will be jeopardized as a result.
Even if we find an improvement in odour with a restricted diet, I don't think it is good to restrict our food intake excessively. Taking supplements may not even guarantee our health; some vitamins/minerals can be difficult to absorb in tablet form, I think. I know it is hard to absorb iron unless you take vitamin C simultaneously, for example. I don't think we should simply accept this diet protocol. we should be getting signatures on that MEBO RESEARCH PETITION to ensure our views get heard and research gets done. I can just imagine a teenager with tmau restricting their diet to 3 or 4 foods on that diet sheet and doing harm to their bodies in the long term. I know that women who opt for hysterectomy (to decrease their odour at menstruation time) also increase their chances of developing osteoporosis.
I've said it before and I'll say it again: THE TREATMENT PROTOCOL FOR TMAU IS INADEQUATE AND POTENTIALLY HARMFUL. WE MUST DO SOMETHING ABOUT IT!
Before diagnosis a year ago, I was healthy but smelly. Now I am unhealthy and smelly. Be careful everyone with following diets. Our health is a gift and tmau should not get in the way of that.