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Post by trundlebee on Aug 22, 2011 14:46:36 GMT
I've had this problem for 3 months and I have no one to talk to. My mother insists she can't smell ANYTHING, as do my sisters (but the times they have been around I don't think I did smell which is inconvenient). My mom actually thinks I'm having mental problems and that I need 'help' which is really frustrating. It is hard for her because I talk about it so much and it depresses her. I don't leave the house it must be very depressing to see your child like this. I have stopped hanging out with my friends, they started to ignore my presence.. I feel like if I begin to talk about this to anyone in my family I will make them suffer and I can't do that.
I just wish I knew what the problem was. Some days its there some days it not. I wish I knew. It's not TMAU because I don't think it's as strong. It Could it be leaky gut but I don't know how that would happen!! I don't sweat excessively and of course I can't smell ANYTHING.
Please reply, I appreciate your input.
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Post by shesmells on Aug 22, 2011 20:33:21 GMT
I know exactly how lonely and frustrating you must feel. Alot of times i feel as thought I have noone to talk to because noone I know personally suffers from BO. But I started feeling a bit better about myself and my condition when I joined this forum and read the stories and testimonies of others that are going through this. I hope that one day you will find someone that will be sympathetic and understanding. And don't give up on your family they may not understand now but keep explaining to them how you feel and I'm sure they'll be there to listen.
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Post by trundlebee on Aug 23, 2011 3:20:26 GMT
I know exactly how lonely and frustrating you must feel. Alot of times i feel as thought I have noone to talk to because noone I know personally suffers from BO. But I started feeling a bit better about myself and my condition when I joined this forum and read the stories and testimonies of others that are going through this. I hope that one day you will find someone that will be sympathetic and understanding. And don't give up on your family they may not understand now but keep explaining to them how you feel and I'm sure they'll be there to listen. Thanks. I appreciate it. I hope both of us can find a way to deal with this or eliminate it in some way.
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Post by anoymous on Aug 23, 2011 5:29:48 GMT
HI trundlebee, Just like u,my mom and my sister cannot smell anything and they think that i have seriously mental problem. I understand how frustating u are. I am very sure that i smell although i smell nothing but i from the response of other people i sure that i smell.
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Post by flyflyfly on Aug 25, 2011 12:47:20 GMT
Trust me, no one will understand our condition and what we have to go through everyday unless they've experienced it themselves.
Talking with my family, I think talking to the wall is far more effective. My mum freaked out when she found out I shaved my pits(guys don't do that, you shouldn't do it!), my dad always looks disgusted and makes noises with his throat and mouth when he's near me. (That's the reaction I get from everyone I try to get close to)
It's a lonely road, I know.
Everyday, what I'm feeling is the anger and frustration they have towards me, for not being as "capable" as their friends' children, or my other cousins.
One of the biggest problem with this condition is, on the outside, we look like any other normal human being. But the enormous social stress and depression that comes with it is hardly anything but normal.
Back when I didn't have any odor problems, I used to be a very proud child. I was extremely confident then, having excelled in my studies and thinking of a great future ahead. But I seemed to have lost that part of me, now I'm happy as long as I get to pass the day peacefully with the least human interaction.
When was the last time I actually go through a day without feeling sad or lonely? I can't even remember.
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Post by flyflyfly on Aug 26, 2011 4:18:00 GMT
I would like to add that despite all the depressing things I've said, I'm still trying to live life to the fullest.
Everyone struggles in their lives in one way or another, even without BO.
Hiding isn't an option, it isn't healthy and will do more damage than good.
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