Post by Arun Nagrath on Aug 19, 2011 19:31:35 GMT
Well, the first case of Odours that respond to Antibiotics that I want to talk about is regarding a lady from UK called Maggs. She was one of the first people I met from our odour group. Here is a posting I made about our meeting on a message board in 2004:-
Yesterday, I met a lady in person whom I had been corresponding
with for quite a while (2-3 years). Her name is Maggs and we met
in North of England.
Like myself, she has strong fecal breath odor and we initially made
contact via an odour group. She has a family and our meeting was
entirely related to mutual support and research.
We met up yesterday for the very first time. It was a long drive for
me but I was curious about this lady because she claimed to be able
to smell (and taste!) her own breath odor all the time. I can never
smell (let alone taste) my own odor.
Initially we met outside a foodstore and there was a slight mutual
awkwardness in making eye contact. However, as we sat at the table
in a Thai restaurant this quickly disappeared and I noticed that
neither of us seemed to be 'offending' each other.
Rather baffled, I asked her if it would be alright if I could have a
little sniff since we were the only diners in this restaurant. It
was perhaps an unusual request however she sort of expected it and
we blew full blast into each other's faces several times.
Okay, here's the bizarre bit....neither of us could smell a thing!!
Believe me, this is more than absurd since my odor has in the past
resulted in people resigning en mass at work
Well, it had to be a mistake! Something was wrong! Was she lying to
be polite? Absolutely not! We had agreed to be completely honest
with each other (no matter howmuch it hurt) so that we could help
each other control it!! I sniffed her hands and all I could detect
was a very slight odor of soap. Her breath smelled only extremely
faintly like a mint we get here called a tic-tac.
Okay, so what about my body odor (I have both breath and body
odor)? ...maybe she could detect that? Well...she looked a little
bemused and so we did it discretely. She went to powder her nose and
passed me on her return. I lifted my arm to scratch my head and she
sunk her nostrils into my arm pit. Hmmm...perhaps not so discrete!
Well?....nothing offensive! Only the slight odor of sweat!! Being
seated at a window seat we were proudly displaying our antics to
passers by on the busy High Street of this posh town:)
The waiter arrived looking a bit perplexed and bowing profusely (it
was a very traditional Thai restaurant). As he served us I noticed
that he had a very strong body odor - it was not fecal but strong
and strange. There was certainly nothing wrong with our sense of
smell!
After the meal we went to a pub and chatted and exchanged further
sniffs. I spent 6 hours with this lady in order to see if there was
any change in odor as a result of eating or drinking or talking
excessively but neither of us smelled anything!!
When the lady got home she phoned me to say that her son had smelled
a really strong unpleasant smell on her clothes after our meeting.
This happens with me a lot since my odor is very very strong.
Okay, the above posting was made in January 2004. Since then Maggs has tested positive to Secondary Trimethylaminuria (TMAU2). I am inviting Maggs here to talk to us about her antibiotic treatment for the bacteria in her gut that produce too much trimethylamine.
Maggs, are you there? Can you tell us about your diagnosis and subsequent treatment.
Yesterday, I met a lady in person whom I had been corresponding
with for quite a while (2-3 years). Her name is Maggs and we met
in North of England.
Like myself, she has strong fecal breath odor and we initially made
contact via an odour group. She has a family and our meeting was
entirely related to mutual support and research.
We met up yesterday for the very first time. It was a long drive for
me but I was curious about this lady because she claimed to be able
to smell (and taste!) her own breath odor all the time. I can never
smell (let alone taste) my own odor.
Initially we met outside a foodstore and there was a slight mutual
awkwardness in making eye contact. However, as we sat at the table
in a Thai restaurant this quickly disappeared and I noticed that
neither of us seemed to be 'offending' each other.
Rather baffled, I asked her if it would be alright if I could have a
little sniff since we were the only diners in this restaurant. It
was perhaps an unusual request however she sort of expected it and
we blew full blast into each other's faces several times.
Okay, here's the bizarre bit....neither of us could smell a thing!!
Believe me, this is more than absurd since my odor has in the past
resulted in people resigning en mass at work
Well, it had to be a mistake! Something was wrong! Was she lying to
be polite? Absolutely not! We had agreed to be completely honest
with each other (no matter howmuch it hurt) so that we could help
each other control it!! I sniffed her hands and all I could detect
was a very slight odor of soap. Her breath smelled only extremely
faintly like a mint we get here called a tic-tac.
Okay, so what about my body odor (I have both breath and body
odor)? ...maybe she could detect that? Well...she looked a little
bemused and so we did it discretely. She went to powder her nose and
passed me on her return. I lifted my arm to scratch my head and she
sunk her nostrils into my arm pit. Hmmm...perhaps not so discrete!
Well?....nothing offensive! Only the slight odor of sweat!! Being
seated at a window seat we were proudly displaying our antics to
passers by on the busy High Street of this posh town:)
The waiter arrived looking a bit perplexed and bowing profusely (it
was a very traditional Thai restaurant). As he served us I noticed
that he had a very strong body odor - it was not fecal but strong
and strange. There was certainly nothing wrong with our sense of
smell!
After the meal we went to a pub and chatted and exchanged further
sniffs. I spent 6 hours with this lady in order to see if there was
any change in odor as a result of eating or drinking or talking
excessively but neither of us smelled anything!!
When the lady got home she phoned me to say that her son had smelled
a really strong unpleasant smell on her clothes after our meeting.
This happens with me a lot since my odor is very very strong.
Okay, the above posting was made in January 2004. Since then Maggs has tested positive to Secondary Trimethylaminuria (TMAU2). I am inviting Maggs here to talk to us about her antibiotic treatment for the bacteria in her gut that produce too much trimethylamine.
Maggs, are you there? Can you tell us about your diagnosis and subsequent treatment.