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Post by stinky on Aug 2, 2016 6:24:59 GMT
hi livinginhope, great to hear from you again. thank you for the information, as alaways, it is a tremondous help. I haven't exercised in a while but will start adding that to my regimen. I used to exercise a lot before, and you are right. the more exercise I got, the less oily sweat I felt. It would be a nice watery sweat that felt clean as opposed to an oily, sticky sweat that felt grimey. I need to get myself motivated to exercise, which shouldn't be to hard to do.
also thank you for the info no TMAU. never really did dig deep on research on TMAU but at this point, I wanna cover all my bases. as far as making any progress since I joined this forum, I believe I am making small steps little by little. at first it seems my symptoms got worse cause my anxiety shot thru the roof reading everyone's stories and the suffering they have gone thru. it brought back everything that I was experiencing thru life with the same struggles. but after my initial anxiety levels have balanced out, I feel I am making improvements.
Once again, thank you for all the info and support, it really means a lot. looking forward to future conversations with you, god bless!
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npd
New Member
Just trying to do my best to stay sane and level-headed every day but hoping for a better future!
Posts: 37
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Post by npd on Aug 10, 2016 2:36:46 GMT
Hey, how have you guys been? I am just checking in to see what has been going on here. I was off-line for a bit because of some computer problems but now I'm back. It's been much the same for me down here in Florida. Not too much new to report, I've been working a little too much at my job but do hope for some relaxation soon from the constant shift work. Well, hope to hear from you soon!
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Post by stinky on Aug 12, 2016 8:17:47 GMT
Hey npd. Things are still the same on my end. I'm hoping with all the changes I made, like switching to a Candida diet, taking antifungals, liver cleansing pills, colon cleanser pills, probiotics, a product called candidase, drinking just water, avoiding yeast and sugar, etc, etc. that I'll find some improvement in a few months. I gave up on miracle quick cures and buying into the latest and greatest snake oil that comes out into the market promising miracle cures. So I'm just trying to stick to a good diet and taking herbs and just hoping that one day I'll notice a difference in my odor. On a side note I got an appt finally to see an endocrinologist but it's next month. So as for now, I'm just gonna keep on assuming my issue is candidiasis. Anyways good to see ya, I was wondering where you went lol
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Post by livin on Aug 12, 2016 14:28:21 GMT
Hi npd
How are things with you. Hope you are doing well.
In a previous post you asked about candida testing:
“Yeah, I wondered if I might have had an issue with candida considering that I was a major sugary drink and food addict while growing up. I also loved sandwiches and ate too much bread too. On top of that, there was that antibiotic usage to help treat my problem with recurrent middle ear infections. I don't know what to think about that or if there is even a test for candidiasis. How did that end up for you? What's else is going on?”
You may not have noticed my post to you giving details of Great Plains Lab testing, so I have printed below again for your information. You should remember that even if you are not diagnosed with candida overgrowth, from what you say about your condition and diet, you could still have a gut dysbiosis and you would still benefit from changing to a healthier way of eating, by omitting all the soda, sugar, wheat and processed foods.
Apparently it is very difficult to test for candida overgrowth as it lives normally in your system, and most doctors don’t believe that it can become overgrown. However, some labs will carry out a test for you. I have only highlighted this one as an example and have copied over some info from the Great Plains Lab website that you might find interesting.
Hope the post below is of use.
IGG FOOD ALLERGY TEST + CANDIDA
The Great Plains Laboratory, Inc. has added Candida to the IgG Food Allergy Test. Candida problems are caused when the benign yeast form of Candida albicans mutates to its fungal form. Candida can take over sections of the intestinal wall causing numerous symptoms. As it grows out of balance it produces toxins that create holes in the intestinal lining, leading to leaky gut syndrome. After entering the blood, Candida albicanscauses an inflammatory immune system response. A wide range of disorders have been linked toCandidaincluding autism, multiple sclerosis, depression, and chronic fatigue. Use of antibiotics, oral contraceptives, chemotherapy, and anti-inflammatory steroids greatly increase susceptibility to Candida.
DRIED BLOOD SPOT (DBS) COLLECTION
The IgG Food Allergy Test w/ Candida is available as a dried blood spot collection for patients and practitioners who can’t perform a blood draw. The specimen can be collected from the convenience of home and shipped to our laboratory for analysis. The dried blood spot test is the same price as the analysis.
CANDIDA ALBICANS SCALE IN IGG FOOD ALLERGY TEST
The Candida albicans scale has been updated to account for the observation that Candida-specific immunoglobulins are present in the specimens of virtually all individuals tested. The new scale is intended to provide a clearer indication of clinical significance and was established according to population percentile ranks obtained from a random subset of 1,000 patients. Specifically, the range of insignificant and low IgG values correspond to the first and second quartiles of the distribution, while moderate values denote individuals in the 51st to 97.5th percentiles. Those with an IgG value greater than the 97.5th percentile are considered to have a high concentration of Candida-specific immunoglobulins.
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Post by livin on Aug 12, 2016 14:30:07 GMT
Hi Stinky
Hope you’re doing well.
I don’t know if you have heard of SIBO (small intestinal bacterial overgrowth), just in case you haven’t I have printed some details below that might be of interest. You can get tested for SIBO through a hydrogen breath test, and if positive you are usually given antibiotics, but you need to change your diet to eliminate sugar etc.
I also thought I would mention that in your original post you said you used to smoke a lot of marijuana and wondered if this could have caused your symptoms.
I found some posts in other forums where people have noticed gut upsets and constipation through taking pot. It looks as if it causes slow motility. I have copied over a post from the IBS forum, I hope the person doesn’t mind – you might find it interesting:
“I'm being treated for SIBO (Small Intestinal Bacterial Overgrowth) by my gastroenterologist.He did a hydrogen breath test and determined by the results that I have SIBO. They had me drink some type of fluid with a certain substance in it (lactose?) and blow into a tube, three times 30 minutes apart. He says the erratic up-and-down results from the digital meter during the test indicate SIBO.
He says that SIBO can be caused by constipation, and constipation can be caused by marijuana use. He says that my constant (daily) use of marijuana needs to stop in order to prevent recurrence of SIBO after his treatment. (He says that bowel motility is slowed down by the marijuana, even if you aren't constipated per se the bowels are moving slower and this can cause the bacteria to migrate to the lower intestine.)
So What is SIBO? SIBO, small intestinal bacterial overgrowth, is defined as an increase in the number of bacteria, and/or changes in the types of bacteria present in the small bowel. In most patients, SIBO is not caused by a single type of bacteria, but is an overgrowth of the various types of bacteria that should normally be found in the colon. Less commonly, SIBO results from an increase in the otherwise normal bacteria of the small bowel. SIBO has been shown to negatively affect both the structure and function of the small bowel. It may significantly interfere with digestion of food and absorption of nutrients, primarily by damaging the cells lining the small bowel (the mucosa). Additionally, this damage to the small bowel mucosa can lead to leaky gut (when the intestinal barrier becomes permeable, allowing large protein molecules to escape into the bloodstream), which is known to have a number of potential complications including immune reactions that cause food allergies or sensitivities, generalized inflammation, and autoimmune diseases (2). Can SIBO Cause Bad Breath?
Many people who suffer from the broad array of illnesses linked to gut dysbiosis complain of suffering from what is otherwise sometimes colloquially known as, ‘bowel breath.’ This symptom can be distressing for many and particularly for those who practice strict oral hygiene. A major recognized cause of this problem is a blockage in the bowel. However there are possibilities relating to causation: firstly that food is sometimes moving more slowly through the digestive tract due to less frequent cleaning waves, and, although this couldn’t be considered a ‘blockage’ in itself it is ensuring that the partially digested food hangs around longer than it should and sufferers are, well, suffering some of the indirect consequences. Secondly, food which is over-fermenting in the digestive tract as opposed to simply degrading, can also result in the emission of noxious smelling gases. Thirdly, food which goes into the stomach but is not being degraded due to low levels of stomach acid will also start to ferment rather than degrade and this too can produce an odor.
Risk factors for SIBO • Low stomach acid .(insufficient production of gastric (HCL), pancreatic (enzymes) and gall bladder (bile) secretions, because each of these helps kill bacteria.) • The use of proton pump inhibitors also puts one at high risk as well since they reduce acidity of the gastrointestinal tract, which allows bacteria to multiply. Damage to nerves in the gut, opiate addiction, bowel surgery, diabetes, hypothyroidism or any condition that affects gut motility, anatomical abnormalities like diverticula, and pancreatitis are just some of the other possible risk factors for SIBO. • The experts are not listing Candida overgrowth as a primary cause of SIBO, but I believe it could be a major contributing factor for the following reasons: Candida produces a toxin called acetaldehyde, which interacts with serotonin and dopamine and creates a very powerful opiate called Tetrahydroisoquinolines. Opiates inhibit the migrating motor complex and gut motility overall. Candida creates inflammation in the gut lining, which would then encourage proliferation of pathogenic bacteria. Acetaldehyde can also deplete Acetyl Coenzyme A, which is needed to combine with choline to make the neurotransmitter acetylcholine, which can result in a deficiency of acetylcholine. Acetylcholine is used by the vagus nerve, which is needed to initiate the migrating motor complex. • H. pylori could potentially precipitate overgrowth of bacteria in the small bowel as well; if it colonizes the stomach it reduces hydrochloric acid levels, which can then allow other bacteria to overgrowth. If it colonizes the small intestine, then it can create inflammation that encourages overgrowth of bacteria • Irritable bowel syndrome • Celiac disease (long-standing) • Crohn’s disease • Prior bowel surgery • Diabetes mellitus (type I and type II) • Multiple courses of antibiotics • Organ system dysfunction, such as liver cirrhosis, chronic pancreatitis, or renal failure
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Post by stinky on Aug 13, 2016 6:28:58 GMT
Hi living! Thanks for the info. Next time I see my gastroentologist I'll ask to be tested for sibo. I do Ave gastroparesis which is slowed bowel mobility. And yes,i was a heavy marijuana user for a longtime. I also noticed that marijuana use gave me chronic constipation. For example whenever I felt like having a bowel movement, as soon as I smoked the maryjane the feeling of having to move my bowels went away. So I'm pretty sure that combined with oxycodone use has done a number on my digestive system. I could go a week without a bowel movement. And I'm pretty sure that lead to me having leaky gut syndrome by having my bowel movements just building up and stretching my intestines out and leading me to have a permeable tract. I was also diagnosed with gastritis and diverticulitis and inflamed intestines which further confirms to me that my marijuana and oxycodone use was a big cause that lead me to having all these symptoms I'm experiencing now. Wish I knew back then what I know now but back then I didn't even give it a second thought, I've since quit smoking marijuana and stopped my oxycodone use but I wonder if I did to much damage that's irreversible. Also was taking a lot of ibuprofen and acetaminophen for chronic back pain so I'm kinda worried if I caused some liver damage as well. But I'll definitely get my gastroentologist to check to see if I have sibo. I've been suffering for 7 years now from the fecal body odors but my worst was the first 5 years . I've improved since then but it's definitely still there. So I'm hoping I still have a chance at getting the symptoms under control. Or even curing it though from what I understand you can't cure it but it is possible to get it under control through lifestyle changes and diet. So I'm working real hard on my diet and hoping thru time I'll get better. Thanks for taking a look at my thread and taking the time to respond. I really appreciate it. And thanks for the info, it helps confirm what I've been thinking as to how I got myself into this position. Hope to hear from you again and God bless!
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Post by livininhope on Aug 15, 2016 11:24:19 GMT
Hi Stinky
I should have mentioned in my last post to you and npd, that for some reason the site would not let me log on with my member name of livininhope and would only let me log on as a guest, so I used livinin as my guest name. I hope I didn't cause confusion and you thought it was two different people. Well it's working okay now and I can get in as usual.
I know how hard your diet is but just wanted to say, keep going, you will get there.
I also wondered if you were still taking the betain hcl and pepsin tablets, and if you are, do you still need to take the prune juice. The hcl caps and digestive enzymes can help some people regulate their bowel movements, and if this is the case you wouldn't need the prune juice.
I started to take hcl at one time and they made a vast difference, I visited the toilet three times a day after meals, however, I stopped taking them and after a while I went back to being constipated, and when I took them again they didn't seem to work the same, so that's when I started to use the prune juice.
Anyway take each day as it comes, you will get there.
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Post by stinky on Aug 16, 2016 6:35:53 GMT
Hi livininhope I was thinking you and living was one and the same. I haven't taken the prune juice after my first jug ran out. But I still take the HCl with pepsin and digestive enzymes religiously. They have helped me a lot. I've been having daily bowel movements and there are days where I have multiple bowel movements a day which is a godsend for me. Still working on getting my diet up to par but even have made big strides in that area as well compared to how I used to eat. I eat mostly salads, avoid sugars, yeast, and cut down on my carbs, especially the no-no carbs, an I avoid gluten. I still eat animal protein but cut back on that drastically. I'll have a few slices of Turkey with my salads at times and I'll sometimes eat a serving of chicken with my salads as well. But it's mostly just salads. Looking into a few diets such as the scd diet, Paleo diet, and the anti candida diet. Also gonna see my GI doctor tomorrow and have her check into having me tested for sibo and also gonna talk more with her about leaky gut. I'm hoping she's one of the doctor's that actually buy into leaky gut syndrome cause I know a lot of American doctor's don't buy into leaky gut syndrome. But I know I'm a prime candidate for leaky gut syndrome. I believe it's the major contributor to my symptoms I'm experiencing. Been doing some searching on the web and I just ordered a product today called intestinew from a brand called renewlife. Should get it within 7 business days. Read great reviews on it for treating leaky gut syndrome. So I hope it's another weapon to help overcome the troubles I been dealing with. Thanks for sticking around and being a positive force. It means a lot, especially when you can sympathize with what all of us on this forum on what it's like to experience these mystery illnesses. It's hard to find someone in real life to talk about this condition. Especially when I know of no one who has to battle this dreaded social condition. I've talked to only a few people about this but other than my ex who I share my problems with, no one else understands. Only my ex really shows compassion. With everyone else it just goes in one ear and out the other. The worst is when they say ohhhh you're just imagining things and you're just being paranoid. I don't have the best sniffer due to sinus issues and like most people I read who deal with fbo, I have a hard time selling myself. But years ago I went to see a naturalpath and she advised I take claritin that you get behind the pharmacist, I guess it's the prescription one cause you need to show an id to get it. She said it would help me be able to smell. So I take that and sure enough, it works wonders for my smelling senses. Kinda pricey but for me it's a small price to pay being that It makes my smelling senses work. So I take that and yes, I definitely can smell my fbo.so I know it's not in my head. Also the snide remarks and comments I get confirms it. What's really weird, for me anyway, is that the smell is strongest coming outta the scalp. I have an fbo aura but the scent is most definitely coming off really strong from my scalp. I'm a male so I've shaven my head bald to try and cut down on the odor but even clean shaven the fbo smell comes off strong from the pores in my scalp. I've been trying to grow my hair out this past month and the smell is worse cause it lingers in my hair. But I don't wanna shave my hair anymore, I'd like to have a hairdo where I can style it lol. But at least when I shaved my head I could keep the odor to a minimum cause I would just wash my clean shaven scalp with antibacterial soap every time I would start to smell the odor. But with hair it's hard to do cause after I try to wash it, it still reeks till I dry my hair off real good. It seems like a wet scalp brings out the odor for me, sorta like how after you wash a dog there's that bad odor that lingers till the dogs coat of fur dry's off. It's so puzzling. So I just try to stay positive so I don't to depressed. Cause I've already committed social suicide by isolating myself. And I hate to say it but some days I just wish life would end cause it's a nightmare. But I have children whom I love and also love me so I need to be there to them no matter what trials and tribulations I go thru. To think of only myself is selfish. So I have hope and faith that one day things will be better. But ya, thanks for all your positivity and for taking the time to respond. It helps more than you know. God bless and hope to hear from you again in the near future. Who knows, maybe there will be a day where I find some sort of resolution or at least a means to control and contain this social nightmare of a condition and I can share it with everyone 😊 till then, hope and faith always. God bless!
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Post by livininhope on Aug 16, 2016 16:49:28 GMT
Hi Stinky It sounds like you are doing everything right to heal your body. I know how hard it is so if you feel down any time just come and have a moan, it helps. I have read posts in the past on different websites and people have had odour coming from different parts of their body, such as feet, chest, abdomen, side of face, and I don’t believe I have read of a specific reason why, but I do believe everything starts in the gut, and candida can wreak havoc with your body. There was a website called MyTummyTantrums and the guy, Jordan, who owned the site kept a kind of diary on his odour and how he was dealing with it. I can’t find the site now, however, I remember he went to a holistic healer (possibly Chinese?) and he was given stuff to take and it brought out like a fungus on his back. Apparently this was the medication killing off the internal candida and it started to come through his skin. So it made me wonder if your scalp issue could be candida related. I found a couple of articles that were quite interesting, and it seems you are not alone with your problem, which is described as Smelly Hair Syndrome or Smelly Scalp Syndrome. I have copied parts of articles in a couple of newspapers and I thought the symptoms sounded just like yours. The first article is from the Daily Mail, and the second article is from the Huffington Post. First Article: Daily Mail, Iain Sallis opinion on Smelly Hair Syndrome (SHS) Iain Sallis, who runs a number of trichology clinics around the UK, has a view on SHS: ‘There can be many reasons why hair smells,’ he says. ‘An excess of sebum is certainly one of them, but people who have a diet that is rich in pungent foods, such as spicy curry, or oily fish, may also find that their scalp and hair give off a distinctive odour. ‘However, there is another, rarer, condition that causes that lingering sour smell that people find so hard to shake, and it’s actually a fungal infection. There are two types — endothrix infections which attack the inside of the hair, and ectothrix infections that attack the outside of the hair.’ ‘These types of fungi are known as zoophilic fungi, as they grow naturally on animals. And it’s close contact with animals, such as cats, dogs and horses, which can be the initial cause of the infection, as fine spores from the fungus are transferred from the animal to the human.’ Once infected, shared combs or brushes can transfer the fungus from person to person. Warm, damp conditions are the perfect environment for the fungi to breed in, which is why frequent hair-washing alone won’t solve the problem — and may even seem to make it worse — and why you might be able to smell that sour smell the minute you step out of the shower. If you suspect you’re suffering from a fungal infection, a trichologist should be able to confirm it by taking a sample of hair or scalp skin, which is sent away to a laboratory to be cultured. Once you know a fungal infection is what’s causing SHS, a double-pronged attack is often the best way to treat it, attacking it internally and externally. An anti-fungal pill will be prescribed and that should be used alongside an anti-fungal shampoo. Iain Sallis suggests coal tar shampoos, such as Alphosyl or T-Gel. But don’t expect things to change over night. He says: ‘Sometimes the fungus is so deeply embedded in the hair that it can’t actually be killed off in this way. The hair itself is dead so, unlike live tissue, doesn’t contain any white blood cells that can help it fend off an infection itself. ‘As a result, in really serious cases patients will need to continue taking anti-fungal medication and using anti-fungal shampoos over a period of time. ‘What this does is ensure that any new hair is free of the fungus. But the patient won’t be entirely free of the infection until every infected hair has naturally fallen out of the scalp.’ Of course, there are hair refreshers, fragrances and deodorants you can use to disguise the smell while you’re waiting for the treatment to be effective. Read more: www.dailymail.co.uk/femail/article-2014492/Have-got-Smelly-Hair-Syndrome.html#ixzz4HVojurht Second Article: From the Huffington Post : The symptoms of smelly hairWe discovered that Smelly Hair Syndrome manifests in one striking symptom: a horrific odor that emanates from the hair and scalp. According to the people who have commented on our blog, the olfactory character of the smell varies from person to person. Some describe it as “... stinks like a diaper.” Others have compared the smell to “sour milk, wet dog, moldy hay, potatoes, an old shoe or dirty socks, a jacket that’s never been to the dry cleaner, and an oily smell mixed with vomit.” The most unusual description we’ve heard was “... sort of a cross between Dorito’s Bold BBQ chips and cinnamon (and not a sweet smell, actually kinda foul) and maybe a hint of cheese.” And, finally, one unfortunate reader told us that “my hair is so smelly that sometimes flies buzz around my head.” The odor is so strong that other people can easily notice it (“I know my co-workers could smell it and I was so embarrassed.”) Spouses and significant others have also told us that the odor is problematic because it can transfer to towels and pillow cases. For some people the smell is noticeable right after showering; for others it starts a few days after they’ve washed their hair. We received several comments from people who shower before sleep and wake up with a smelly scalp. Interestingly, one person pointed out that their hair starts out with one scent right after washing and changes to a different odor about 12 hours later. In addition to the malodor, some people experience increase in oily hair and scalp. One woman notices a “thick, oily, flour-like substance on my scalp.” Causes and curesThese secondary symptoms made us wonder if a potential cause of Smelly Hair Syndrome could be seborrheic dermatitis (seb-o-REE-ik der-muh-TI-tis), because it causes an increase in oil production and flaky scalp residue. However, according to Mayo Clinic’s webpage, scalp odors like those described above are not typically associated with seborrheic dermatitis. Furthermore, our readers tell us that in many cases their doctors have not been able to identify a definitive cause. Many said that their doctors didn’t take the problem seriously: “I even went to the dermatologist. Twice! He never heard of such a thing and seemed to not even believe me which made me very angry! Why don’t these doctors have a clue?!” “I went to see a dermatologist. Which was of no help! I got prescriptions and so forth but nothing worked.” Without a satisfactory medical explanation, people are left to figure out their own cures. Our readers have tried just about everything you can think of, including medicated shampoos like Nizoral, Selsun Blue, Neutrogena T/Gel, Head & Shoulders and Denorex. They’ve used tea tree-based products (like Giovanni Tea Tree Triple Treat conditioner) because of the alleged anti-fungal properties of tea tree oil (unfortunately, most tea tree oil shampoos contain very little of the actual oil). In desperation, some people have even tried medicated pet shampoos. Others have forsaken commercial products for home remedies like lemon juice, baking soda, apple cider vinegar, coconut oil, aloe vera, neem oil, chlorophyll supplements and a mixture of honey and cinnamon. One person even uses hand sanitizer on her scalp two or three times a day. Then there’s the most elaborate of all the treatments we’ve heard of: “I go to this salon where they rub a liquid into your hair, wrap it in plastic wrap and steam it. This is followed with something they call ‘frequency treatment’ — it is a glass rod attached to a machine and they deliver something like an electrical impulse.” What really works to treat Smelly Hair Syndrome? Of all the solutions proposed by our readers, two seemed to provide reasonably consistent results: Dial antibacterial liquid body wash and sulfur-containing soaps. These treatments make sense from a scientific point of view, if the cause is bacterial or fungal. An antibacterial agent (like the Triclosan used in the Dial bodywash) could prevent bacteria from growing, while sulfur could reduce scalp oiliness thereby eliminating the “food” that bacteria or fungi need to grow. For those who haven’t had success with other treatments, these two options maybe worth a try. Of course, you should consult with a dermatologist to ensure your symptoms aren’t caused by psoriasis or some other condition. ConclusionFrom the comments we’ve received, Smelly Hair Syndrome appears to be a real problem that is unresolved for many people. Based on our readers’ input, the medical community has not yet provided a satisfactory solution. According to our understanding of chemistry and hair and scalp biology, shampooing with sulfur and Triclosan-based soaps may offer some relief. We hope that more definitive treatment options are identified by the medical and cosmetic science communities. Follow Perry Romanowski on Twitter: www.twitter.com/thebeautybrains
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Post by stinky on Aug 17, 2016 6:04:30 GMT
Hi livininhope! Always great hearing from ya. Thanks for all the info. I have just started using the Neutrogena t/gel. It's to early to notice a difference yet. I tried looking for the sulfur containing soaps but has gotten no luck finding a store in my area that carries it. Might go online and shop for it. I will definitely try the dial antibacterial soap, should be easy to find that on the shelf at a store near me. I'm also looking into seeing a holistic Chinese doctor being that there's one right down the road from me. I've read that people where having promising results from taking herbs the Chinese holistic doctors been suggesting to their patients. I do believe my smelly scalp is fungal/Candida related. I think I let the Candida get way outta control before I started trying to begin dealing with the issues I'm experiencing now. So I'm thinking if I stick to what I'm doing, I'll get positive results due time. Took me 7 years to get to this point so I'm thinking it's gonna take some time to reverse and undo all the damage I did to myself. And I'm almost certain all this is gut related. Started off in the gut and in time it spread throughout my system. Gonna get a sibo test in a month so hopefully that will answer a few questions and concerns. My Gastroentologist mentioned looking into the sibo diet. Didn't know there even was a sibo diet so I'm gonna do some research into that. Thanks for all your help. You've helped me more than all the doctors I've been seeing! I've gained a lot of insight from your informative posts. I really appreciate it! Thank you and God bless.☺
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Post by livininhope on Aug 18, 2016 16:49:31 GMT
Hi Stinky
Glad I can be of help. The only note of caution I would offer is that when I first started to research my odour issues, I read up on all the different self-help sites, and various posts, and I went off in a number of directions trying different things to find a cure.
Some time ago I cleared out my cupboards of all the meds, herbal tinctures, lotions and potions that I had bought to try and cure myself, and I filled almost two black bags – some of the stuff hadn’t even been opened and was out of date. So just be careful.
I would also offer a word of caution about holistic healers (such as Chinese herbalists etc), some can be really helpful, but you need to be careful taking the meds they give you and ensure that they do not react with any meds you are currently taking. Chinese herbs are very strong and I was advised that you should not take them long term. It might be wise to wait and see what all your tests produce first before you visit one – you might not need their help with any luck!
Re the SIBO diet, that is only one of many, there’s the Cedars-Sinai diet, GAPS diet, FODMAPS diet, Specific Carbohydrate Diet, the low-fermentation diet. It can be quite confusing which one is best, they are all good in their own way. While they all vary on what you can eat, the one thing they are all agreed on is that you don’t want foods fermenting in your gut and you have to stop eating sugar and starchy foods. Most don’t allow you to eat wheat, lactose, or processed foods (they can contain hidden sugars).
Keeping to a strict diet is hard. You start out saying that you would live on nothing but lettuce leaves if it gives you your life back and gets rid of the odour, but after a while it can weigh you down, and you start to crave all the old foodstuffs again. That’s when you need support to keep going, and that’s when this site and all the other sites are useful. There are so many of us in the same boat.
You seem to be doing well on your diet, eating your salads, but if you are adding sliced chicken or turkey, it’s best not to eat packs of sliced meat that you can buy from the supermarket as they are processed. You might not be doing this but just in case, it’s better to know. You are better roasting or boiling a chicken breast and slicing this up and keeping some in the fridge or freezer.
So keep going, and good luck with your breath test, please let us know how you get on.
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Post by stinky on Aug 18, 2016 20:18:21 GMT
Hi livininhope! I was just looking at all the supplements and snake oils I accumulated over time and I do think it's time for me to thin it out. I'm gonna keep the ones that have shown me some improvement and trash the ones that haven't done anything for my symptoms. And I will hold off on the Chinese holistic doctor for awhile. I got appts with an endocrinologist soon and dermatologist I got my plate full right now, don't wanna over do it to much all at one time. Thanks for the insight. Also I think I'll go with the scd diet and try to stick with that. Also the turkey slices and chicken I eat are prepackaged and probably processed so I need to switch and buy fresh. Also thinking of adding beef but only a few times a week. And also keeping my animal proteins I eat to small portions. That way they digest easy and don't ferment in my stomach. On a side note, I am seeing some progress. I still smell bad but only after a I start heating g up and sweat all day. My sticky oily skin is down to a minimum. Before, I would stink 30 mi Utes after a shower. But now it takes longer before the stench kicks in. A d if I am not active all day, I stay fresher much longer than before. My pits still need some work. Deodorant doesn't last long so I've been using Arris extra dry anti persperant spray and that does a pretty good job for me. It lasts the longest outta all the deodorants I tried, and believe me, I tried em all lol. Also before I use the spray, I'll wipe apple cider vinegar under my pits, it seems to help me stay fresher longer. Anyways that's all I got for now. Will keep you updated. God bless!😃
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Post by livininhope on Aug 19, 2016 20:51:45 GMT
Hi Stinky
Great to hear you are making progress, and in such a short time, you have done well.
I have read posts on different sites and some people say that as well as a change of diet they had to do exercise as well. Some people say that they go for a run first thing in the morning, or do some real cardio exercises, and they feel that they smell less during the day.
Obviously not everyone can exercise in this way, I know I can’t, but some people also go to the sauna a couple of times a week.
Instead of running I tried power walking, which is basically walking briskly swinging your arms. I think this is classed as a cardio workout? I also bought a DVD to workout at home. I think its all about working up a sweat to clean out the toxins. I think it also makes you feel better. Something to think about.
Once again, well done and keep making progress. Best wishes.
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Post by stinky on Aug 19, 2016 22:35:40 GMT
Hi livininhope! Thanks for the positive vibes. Exercise is next on my to do list. I wish there was a dry sauna or steam room near my area but there is none. There is a gym in my vicinity but no sauna or steam room there. There's a pool also near where I live but they also have no steam room or sauna. It would help me so much to help me get a good sweat going. So yes, I guess the next best thing to do is start of with going for a nice long walk and get some sweat going. I'll incorporate that into my daily routine, just gotta get my motivation for exercise a jump start. It's so hot here that going for a walk during the day would get my perspiration flowing, but it's a little to hot lol I think I'm gonna start off by doing my walking in the afternoon and once I get accustomed to that, do my walking during the day. I wonder if a jacuzzi would do me any good? As far as walking I'll probably start of walking a mile and see if I get a good sweat going. If not I'll increase the distance little by little till I get a nice perspiration going. My conditioning is probably not up to par so I'll be hitting two birds with one stone lol by getting a sweat going and by upping my conditioning by cardio. Maybe I might just start of by staying in the sun more often cause it's so hot here, just staying still in the sun I break a sweat. But starting today I'll go for a walk and try to stick with it daily. I used to have access to a hot sauna and steam room before and I used to love sitting in there. I would feel my sweat getting better by daily use. And by better I mean my sweat would be less and less oily and sticky and would be more of just a nice watery sweat. But I moved a few years back and don't have access to one anymore. So walking it is.😃 Thanks for all the help and till we chat again, god bless!
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Post by livininhope on Aug 22, 2016 9:29:43 GMT
Hi Stinky
Remember, don’t get dehydrated, if you are out exercising in the sun you should take a small bottle of water with you and take regular small sips – don’t want you fainting!
I live in Scotland so we don’t get a lot of sun – usually rain, and we moan that we want the sun. Then if we get a heatwave for a couple of weeks, we all moan it’s too warm and uncomfortable and we want the cooler weather (even rain) back.
I think a Jacuzzi could be good, it’s hot water and steam, and is it not supposed to be a kind of muscle massage? Worth a try, certainly won’t do you any harm. Some people actually do yoga and meditation to de-stress and they say that helps, so any kind of relaxation should be good.
I am having problems with my diet. I don’t eat red meat or seafood, and I have to force myself to eat fish occasionally, so I only eat chicken or turkey. So I love fruit and veg, and was doing well, although it was a lot of fruit, but I started to add in oatmeal and some dates to sweeten it. I also added lentils to my soup, and I did some baking with coconut flour and almond flour – I made banana bread, and it had honey in it. So if you add in the prune juice, I was probably on sugar overload. Even though the sugars from these foods are supposed to be easily digested, it must have been too much for my system and I feel as if the odour is returning, so it’s back to the drawing board.
I was following the Specific Carbohydrate Diet and have been on it for some time, and the only foodstuff I would not have been allowed is the oatmeal, but I doubt if it was just this that caused the problem. It’s possible that I have some malabsorption issues, like fructose malabsorption, so I may have to keep my fruit portions smaller. I think you have the right idea about keeping the meat portions small, perhaps I need to keep all my portions small to allow my system to digest what I eat.
I have started from scratch again with just chicken broth and scrambled eggs just now, and will slowly add in chicken and a small amount of veg and see what happens.
Good luck with the exercise and take care.
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