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Post by roses49 on Jul 4, 2012 21:04:44 GMT
Hello everyone. :)Just writing almost like it’s my diary. I find it really baffling how an odour from one 5ft 5ins person can seem as strong as a rubbish tip. I went to the park this afternoon as the sun came out. I was sitting on the bench and I would guess maybe 30ish meters away maybe more (and of course passers-by of close proximity) people passing by were reacting to my body odour. I don’t believe this was me being paranoid. I am quite rational, but they were coughing and gasping like they had been under water/starved of oxygen, also the usual sneezing, wiping of the nose etc. I would say it was a bad day for odour 8 or 9 out of ten. It’s quite hard to monitor as I cannot smell it myself. And like most sufferers experience; doctors/health professionals can’t smell it. It would be nice if there was something on the market to buy at a reasonable price so I could know when and how strong the odour is. Then I would know what works for me and what my body responds to. I really want to try to get a handle on all of this but I haven’t a clue where to start. It’s all very complex. I had tests in January of 2011. I was tested for Trimethylamine (TMA) and Dimethylglycine. Both were in the normal range. I do suffer from constipation so I feel that has a lot to play in the role of causing offensive odour. A few years ago I would have went home and cried my eyes out or feel quite angry . This condition whatever I have is causing a roller coaster of emotions. At the moment I am used to it. I expect to have the same comments and behaviours towards me. Saying that I don’t want to put up with this forever, I want a change! I am quite aware of time passing me by.
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Post by mrchampion on Sept 4, 2012 16:26:50 GMT
Hi Roses, it's so much like from my life. I too have been tested for TMAU and Dimethyblah and both were negative. I have had different kinds of other tests too taken with all results normal. I too can't smell myself straight, and it's been very stressful to hear people's comments of which I have no idea what they're talking about. It also makes it very difficult to try find out the reason for the smell. Nowadays I'm feeling more and more like people's (non-) reactions to me are the sole factor behind my emotional status.
I can't understand why can't there be one person who'd come and say, 'hey can I have a word with you somewhere in private' and then would tell you what's the problem and discuss the issue with a friendly attitude, without of need to humiliate you publicly. Or try to make you paranoid with their 'polite'. little hints, without of going straight to the point. If I was braver I would ask stupid questions like 'did you mean something by sniffing' or 'by holding your hand so close to your nose'.
Today I was watching some people riding their bicycles and it just hit to me how weird life I'm living, un-life, isolated from people. I can see other people, I can see life, but can't participate in it. It's a bad day when you remember how your life was before this *#(% condition, and realize how far you have come from that. I just keep wishing someday I will wake up cured.
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Post by healinghappens on Sept 5, 2012 7:43:51 GMT
roses49 and mrchampion- I'm right there with you. I have actually asked several people point blank "Do you smell anything?" and always I get a "No." But when I go outside, passers by have a totally different way. I get the coughs and the "that bitch smells like shit" all the time.
My neighbours have a problem, too, but don't give me the chance to explain that I've been to several doctors who have never smelled it. Had to call the police the other night because of new neighbours being threatening like "fuck you bitch, you fucking smell" telling me I don't care and I don't do anything. It's ridiculous how people will go so far as to be amazingly abusive when they don't understand that a few polite words would go a long way. "Miss, every night I can tell there's a foul odour and it's very difficult for me to say this to you because I don't want to hurt your feelings, but I believe it's coming from you." Instead it's abuse, abuse and more abuse. I've had everyone I can think of smell me after I've eaten offensive foods and NO ONE ever smells it. So I've been clear with the neighbours that I can't get anywhere unless they tell me. They still choose to call me a "fucking bitch" say I'm "fucking stupid" and generally make it incredibly difficult to feel like I can be in my flat EVER these days.
The last neighbours that were here decided on the live and let live approach because I wrote a letter asking nicely "What is it that you experience? I'd really like to know. Please feel free to contact me." But they denied there was any problem and just continued thinking less of me. My employment consultants, psychologist, doctor, real estate, strata and the police have not smelled the foul odour. I've talked to them all, and I can only get treated for a psychological disorder.
I don't have any self esteem issues or self confidence issues, though, so when insults are thrown at me, I just feel it says something about their character and not mine. I've worked very hard to get to the bottom of the issue, accepted the fact that I may have to live with this forever not knowing. I see a bright future, but I know there will be good days and bad. Right now it's been in the bad area since these new neighbours moved in.
I want you guys to know I feel you, and I hope you can find help and mental solace. It IS emotionally taxing, but we are worthy people.
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Post by mrchampion on Sept 8, 2012 15:32:54 GMT
Thanks. It's nice to hear supportive words from someone who knows what you're going through. You're absolutely right in saying they have a problem with their attitude, I mean I might have problems with my metabolism but they have problems with their humanity. All the best to you too.
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Post by mrchampion on Sept 8, 2012 15:36:14 GMT
It was supposed to say: I mean I might have problems with my metabolism but they have problems with their humanity, LOL.
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