Post by Arun Nagrath on Jul 3, 2011 8:09:30 GMT
sarafina77
Junior Member
Join Date: Mar 2011
Location: St Petersburg
Posts: 12
more on meds for Apo Bromo
Hello,
I think I may have offended someone with my last post as my rights were taken away for awhile. I just want to re-iterate that Ive found very few Dermatologists that know how to treat apo bromo, but ive been very fortunate because I travel for work, Im a medical specialist, and when I was in DC I found Dr Cheryl Burgess, when I came back to FL she referred me to Dr. George Cohen, both of these doctors are leading Dermatology/pathophysiologists and BOTH of them have several APO BROMO patients that they treat with:
Wellbutrin
Paxil
Doxepin
As well as the regular topical agents you probably already know about. If you have never heard this before you can find an experienced Dermatologist and verify the information. The drugs work by decreasing gland secretions, and inhibiting the pumping mechanism of the gland. Wellbutrin eliminates my APO BROMO but I was trying to find something else because recently it began causing me side affects that I attribute to my lifestyle factors making it difficult for my liver to process it.
I was started on Doxepin but eventually my body grew resistant. Now Dr Cohen has prescribed me paxil, but I decided to just live healthier and go back on the Wellbutrin. These medications work instantaneously, at least the doxepin and wellbutrin do. If you want to find out more about it, search a dermatologist/pathologist who specializes in rare conditons in your area. They can verify that this is a treatment, and it works.
Im looking into other things like electrolysis to get rid of this but for now Im staying on the wellbutrin. Maybe soon they will have other advances and I wont have to take medication.
Good Luck, I hope if you try it works as well for you as it does for me
#2
23rd March 2011
Hope4change
Member
Join Date: Jan 2009
Posts: 35
Re: more on meds for Apo Bromo
Hi Sarafina77,
I just want to say thank you for the information, its definitely something I will look into.I have no idea how you could have offended anyone by passing on helpful information.Though I have noticed that some people on this forum attack people when they are trying to give helpful information which is unfortunate because this is one of the reasons more people don't come forward with information about products which have been helpful to them.I've been on these forums for several years and I have never seen anyone mention any drugs effective against bromhidrosis so I really appreciate your taking the time to do that.The truth is that while the majority of the people on this site concentrate their attention on TMAU, they fail to realize that it is a very rare condition and out of the 9,000+ members on this site, I'd be surprised if even 100 actually have TMAU.Anyway, thanks for the information, its all about options and if an antidepressant is an option for me then I want to know about it.Hopefully as adults, we can all have the good sense to review information provided on this forum and decide for ourselves if its something that we are interested in.
#3
23rd March 2011
mpdela
Join Date: Jan 2009
Location: Miami, Florida
Posts: 1,350
Blog Entries: 3
Re: more on meds for Apo Bromo
Hi sarafina77,
You seem to firmly believe in this treatment as being effective, and you also seem determined to share it with others in an effort to help. Thank you for that. There are a few ideas I would like to throw into the picture about this to promote further discussion.
We have published a few posts in MEBO's blog about the genetics of bromhidrosis and hyperhidrosis, and it seems to support your perception that AB,
Quote:
...is not a disease, the glands are usually bigger, more numerous, and pump out more fluid then people without AB.
I think that what you and these studies are saying is that just because it's genetic, it doesn't necessarily fall under the "disease" category, just like the color of our eyes and hair, or shape of our face is genetic, and not necessarily a disease, even if we may not find them attractive.
Also, even though these drugs are used for depression, like most drugs, they may have some side effects to some people, and perhaps the "drying" aspect of it is one of the side effects, which was probably not originally intended by the manufacturer.
I agree with Hope4change, although TMAU is the best known body odor condition, it is by far NOT the one and only, as other conditions have yet to be better identified, classified, and treated. In fact, what always stands out in my mind about cases of TMAU is that even after the TMAU odor-management protocol has been strictly applied and followed, and TMA levels decrease in the urine to normal levels, many sufferers still have an odor, at least one that is detected by some people. This is to say that what works for persons with TMAU, may not be what works for someone else; and furthermore, what works for a person with TMAU in decreasing TMA levels in the urine, may not totally work in eliminating all the odor of that person.
The same holds true for people with AB. Although these drugs may give you adverse side effects, srafina77, it seems to you that it does work at reducing odor in your case. This may also work for someone else; and then again, it might not for yet another person. We do have to be open minded and allow people to bear testimony of what works or doesn't work for them. It may help some of us, though not necessarily all of us, not all of us have the same cause of the various body odor conditions.
We should always be open to think outside the box, and allow somewhat reasonable ideas, though new and revolutionary, to be presented, especially for the benefit of those who have no other recourse, so that we may at least have the option of choosing to try it or not.
This is just my opinion. What do others think?
María
__________________
#4
24th March 2011
jcc34
Senior Member
Join Date: Mar 2010
Location: London
Posts: 404
Re: more on meds for Apo Bromo
I think we should all feel free to openly post up things that we believe might be helpful, which we of course are. People should also accept counter points on issues without taking it personally, a disagreement in perspective may not always be a bad thing it might spark conversation and help us learn. A point of disagreement is not a rejection of character or ungratefulness.
I think Sarafina has made an important and beneficial post in fact, as it is a treatment that appears to have actually achieved the purpose - this wasn't immediately clear to me. I hope i haven't offended anybody with my previous postings, I'd like to think that my post on this topic is the only one that could be taken offensively and that was partly due to a misreading.
#5
24th March 2011
mpdela
Join Date: Jan 2009
Location: Miami, Florida
Posts: 1,350
Blog Entries: 3
Re: more on meds for Apo Bromo
jcc34,
Contrary thoughts are always welcome as food for thought and discussion. If not, this forum would be boring, and we would accomplish nothing. We have to think outside the box and turn to each other for ideas. I am grateful to be a part of a very well-versed community from whom I learn tremendously.
María
#6
25th March 2011
scientist42
Site Owner
Join Date: Jan 2009
Location: London
Posts: 719
Re: more on meds for Apo Bromo
Hi Sarafina,
I have just yesterday returned from a 2 month holiday in Asia so hopefully should get much more time now to update this site. I can assure you that your experience of having your posting rights taken away was most likely due to a technical glitch and not something intentional. I would have been aware if it was something intentional.
Unfortunately, this site has more than it's fair share of login issues etc. These are often solved by either deleting browser cookies or by using a different computer. Believe it or not, we even get idiots trying to sabotage this site by creating login difficulties! With time we will have better IT solutions.
Thank you very much for the information about antidepressant treatment of apocrine bromhidrosis (AB). I can see that this has been very effective in your case. I would like to add your posting under our 'Useful Products' section so that others can also benefit. We did have a Useful links section which mentioned these treatments but I can't find it for some reason. If you come across any good reference articles about this, please do let me know so that we can include them on the site.
There are also other successful treatments for AB. Another member has recently corresponded with me about the great success she had with laser sweat ablation (LSA) and this was first mentioned to me by an Australian gentleman who reported over 90% improvement in his AB. Another treatment that I would like to mention is surgery and this has helped some people.
However, most of these treatments are relatively new (less than 5 years old) so we really don't know the long-term effects! For instance, I have heard some people having success with surgery but only to find the odour reemerged a year later in a different location! So we really don't know enough about these modern treatments. I would like to highlight anything that has worked for our members.
Anyway, I will do my bit and do a little review next week on treatments for Apocrine Bromhidrosis. But I really don't want to do this just by myself so I will post my initial review here and ask members for suggestions. We have many knowledgable members here and I wish to be guided by members' success more than by theoretical treatments
Arun
1 Hour Ago
BigJoe
Junior Member
Join Date: Jul 2011
Location: Los Angeles
Posts: 0
Re: more on meds for Apo Bromo
Has anyone heard more about this? I live on the West Coast and am interested in perusing this as a treatment.
Junior Member
Join Date: Mar 2011
Location: St Petersburg
Posts: 12
more on meds for Apo Bromo
Hello,
I think I may have offended someone with my last post as my rights were taken away for awhile. I just want to re-iterate that Ive found very few Dermatologists that know how to treat apo bromo, but ive been very fortunate because I travel for work, Im a medical specialist, and when I was in DC I found Dr Cheryl Burgess, when I came back to FL she referred me to Dr. George Cohen, both of these doctors are leading Dermatology/pathophysiologists and BOTH of them have several APO BROMO patients that they treat with:
Wellbutrin
Paxil
Doxepin
As well as the regular topical agents you probably already know about. If you have never heard this before you can find an experienced Dermatologist and verify the information. The drugs work by decreasing gland secretions, and inhibiting the pumping mechanism of the gland. Wellbutrin eliminates my APO BROMO but I was trying to find something else because recently it began causing me side affects that I attribute to my lifestyle factors making it difficult for my liver to process it.
I was started on Doxepin but eventually my body grew resistant. Now Dr Cohen has prescribed me paxil, but I decided to just live healthier and go back on the Wellbutrin. These medications work instantaneously, at least the doxepin and wellbutrin do. If you want to find out more about it, search a dermatologist/pathologist who specializes in rare conditons in your area. They can verify that this is a treatment, and it works.
Im looking into other things like electrolysis to get rid of this but for now Im staying on the wellbutrin. Maybe soon they will have other advances and I wont have to take medication.
Good Luck, I hope if you try it works as well for you as it does for me
#2
23rd March 2011
Hope4change
Member
Join Date: Jan 2009
Posts: 35
Re: more on meds for Apo Bromo
Hi Sarafina77,
I just want to say thank you for the information, its definitely something I will look into.I have no idea how you could have offended anyone by passing on helpful information.Though I have noticed that some people on this forum attack people when they are trying to give helpful information which is unfortunate because this is one of the reasons more people don't come forward with information about products which have been helpful to them.I've been on these forums for several years and I have never seen anyone mention any drugs effective against bromhidrosis so I really appreciate your taking the time to do that.The truth is that while the majority of the people on this site concentrate their attention on TMAU, they fail to realize that it is a very rare condition and out of the 9,000+ members on this site, I'd be surprised if even 100 actually have TMAU.Anyway, thanks for the information, its all about options and if an antidepressant is an option for me then I want to know about it.Hopefully as adults, we can all have the good sense to review information provided on this forum and decide for ourselves if its something that we are interested in.
#3
23rd March 2011
mpdela
Join Date: Jan 2009
Location: Miami, Florida
Posts: 1,350
Blog Entries: 3
Re: more on meds for Apo Bromo
Hi sarafina77,
You seem to firmly believe in this treatment as being effective, and you also seem determined to share it with others in an effort to help. Thank you for that. There are a few ideas I would like to throw into the picture about this to promote further discussion.
We have published a few posts in MEBO's blog about the genetics of bromhidrosis and hyperhidrosis, and it seems to support your perception that AB,
Quote:
...is not a disease, the glands are usually bigger, more numerous, and pump out more fluid then people without AB.
I think that what you and these studies are saying is that just because it's genetic, it doesn't necessarily fall under the "disease" category, just like the color of our eyes and hair, or shape of our face is genetic, and not necessarily a disease, even if we may not find them attractive.
Also, even though these drugs are used for depression, like most drugs, they may have some side effects to some people, and perhaps the "drying" aspect of it is one of the side effects, which was probably not originally intended by the manufacturer.
I agree with Hope4change, although TMAU is the best known body odor condition, it is by far NOT the one and only, as other conditions have yet to be better identified, classified, and treated. In fact, what always stands out in my mind about cases of TMAU is that even after the TMAU odor-management protocol has been strictly applied and followed, and TMA levels decrease in the urine to normal levels, many sufferers still have an odor, at least one that is detected by some people. This is to say that what works for persons with TMAU, may not be what works for someone else; and furthermore, what works for a person with TMAU in decreasing TMA levels in the urine, may not totally work in eliminating all the odor of that person.
The same holds true for people with AB. Although these drugs may give you adverse side effects, srafina77, it seems to you that it does work at reducing odor in your case. This may also work for someone else; and then again, it might not for yet another person. We do have to be open minded and allow people to bear testimony of what works or doesn't work for them. It may help some of us, though not necessarily all of us, not all of us have the same cause of the various body odor conditions.
We should always be open to think outside the box, and allow somewhat reasonable ideas, though new and revolutionary, to be presented, especially for the benefit of those who have no other recourse, so that we may at least have the option of choosing to try it or not.
This is just my opinion. What do others think?
María
__________________
#4
24th March 2011
jcc34
Senior Member
Join Date: Mar 2010
Location: London
Posts: 404
Re: more on meds for Apo Bromo
I think we should all feel free to openly post up things that we believe might be helpful, which we of course are. People should also accept counter points on issues without taking it personally, a disagreement in perspective may not always be a bad thing it might spark conversation and help us learn. A point of disagreement is not a rejection of character or ungratefulness.
I think Sarafina has made an important and beneficial post in fact, as it is a treatment that appears to have actually achieved the purpose - this wasn't immediately clear to me. I hope i haven't offended anybody with my previous postings, I'd like to think that my post on this topic is the only one that could be taken offensively and that was partly due to a misreading.
#5
24th March 2011
mpdela
Join Date: Jan 2009
Location: Miami, Florida
Posts: 1,350
Blog Entries: 3
Re: more on meds for Apo Bromo
jcc34,
Contrary thoughts are always welcome as food for thought and discussion. If not, this forum would be boring, and we would accomplish nothing. We have to think outside the box and turn to each other for ideas. I am grateful to be a part of a very well-versed community from whom I learn tremendously.
María
#6
25th March 2011
scientist42
Site Owner
Join Date: Jan 2009
Location: London
Posts: 719
Re: more on meds for Apo Bromo
Hi Sarafina,
I have just yesterday returned from a 2 month holiday in Asia so hopefully should get much more time now to update this site. I can assure you that your experience of having your posting rights taken away was most likely due to a technical glitch and not something intentional. I would have been aware if it was something intentional.
Unfortunately, this site has more than it's fair share of login issues etc. These are often solved by either deleting browser cookies or by using a different computer. Believe it or not, we even get idiots trying to sabotage this site by creating login difficulties! With time we will have better IT solutions.
Thank you very much for the information about antidepressant treatment of apocrine bromhidrosis (AB). I can see that this has been very effective in your case. I would like to add your posting under our 'Useful Products' section so that others can also benefit. We did have a Useful links section which mentioned these treatments but I can't find it for some reason. If you come across any good reference articles about this, please do let me know so that we can include them on the site.
There are also other successful treatments for AB. Another member has recently corresponded with me about the great success she had with laser sweat ablation (LSA) and this was first mentioned to me by an Australian gentleman who reported over 90% improvement in his AB. Another treatment that I would like to mention is surgery and this has helped some people.
However, most of these treatments are relatively new (less than 5 years old) so we really don't know the long-term effects! For instance, I have heard some people having success with surgery but only to find the odour reemerged a year later in a different location! So we really don't know enough about these modern treatments. I would like to highlight anything that has worked for our members.
Anyway, I will do my bit and do a little review next week on treatments for Apocrine Bromhidrosis. But I really don't want to do this just by myself so I will post my initial review here and ask members for suggestions. We have many knowledgable members here and I wish to be guided by members' success more than by theoretical treatments
Arun
1 Hour Ago
BigJoe
Junior Member
Join Date: Jul 2011
Location: Los Angeles
Posts: 0
Re: more on meds for Apo Bromo
Has anyone heard more about this? I live on the West Coast and am interested in perusing this as a treatment.