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Post by nick25 on Oct 26, 2011 12:06:53 GMT
Hello all, After almost 10 years of BO I finally found who was the culprit behind my condition - the borrelia burgdoferi spirochete( the causative agent of Lyme disease), which is in my blood and all over my body, but especially in my stomach, along with coinfections like babesia, bartonella and helicobacter pylori.
I still have BO and it will probably take a lot of time( if ever) to get rid of this infection. My BO intensifies immediately after I eat, seconds after the food enters my stomach. It was especially hard to diagnose this infection since I am seronegative, my immune system didn't produce antibodies for borrelia so ELISA and Western Blot tests were all negative. However dark field microscopy revealed that I have this nasty spirochaete in my blood. Sadly, the only treatment for lyme disease is long term antibiotics, which I'm terrified to follow since the last time I took antibiotics my BO got worse, much worse. My explanation is that antibiotics like Flagyl and Tetracycline which I took for helicobacter( I didn't know that my real problem was borrelia back then) weren't strong enough to kill borrelia and instead the spirochaete hid in cysts becoming even harder to kill. Thanks for making time to read this, I would apreciate any advice and excuse my english, it's not my native language. Thanks again, and hang on!
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jcc34
Junior Member
Posts: 86
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Post by jcc34 on Oct 26, 2011 18:36:52 GMT
Hi Nick
Wow, you're one of the few people that actually know the direct cause of your odour and the bacterial species.
If you're worried about long term antibiotics, which I would be personally, possibly you could research doctors of integrated medicine and see if somebody can see an alternative solution.
I think you'd benefit from boosting your immune system with things like: high dose vit C, astragalus, black elder, zinc, echinacea. Also if you can work out what the bacteria feeds on possible you could starve it with a fast. Just ideas.
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Post by livininhope on Oct 29, 2011 12:20:56 GMT
Hi Congratulations on finding out the underlying cause of your problems. For info there is a book called “The top ten lyme disease treatments” and you can get an excerpt from the website below: www.lymebook.com/top10formsIf you cannot get access then either type in the book title or the full name of the tick - borrelia etc…… Goood luck
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Post by livininhope on Oct 29, 2011 12:34:38 GMT
Sorry I forgot to mention that there are quite a lot of suport groups and forums on the web for lyme disease, I am sure there will be plenty of discussion on various treatments.
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Post by nick25 on Oct 29, 2011 13:43:25 GMT
Thank you all for your advices, they are really useful for me; I dare to believe that most BO are either caused by a metabolic disease like TMAU or other of its kind or by a hormone imbalance, either by a fungal or bacterial overgrowth. I guess it's already accepted that BO it's not a disease itself but a symptom, a terible symptom of a disease.
Unfortunately, most of the times is so hard to find the cause. It took me 10 years and tens of visits to all kind of doctors to find that I have lyme disease and it's really strange that it's causing me BO, since I never heard of a lyme patient having BO.
In my case, borrelia, the lyme spirochaete infected my stomach too( as well as other organs and the whole body, it's a systemic infection). I always knew that my BO is stomach related but couldn't find the culprit until now and I hope I'm not wrong, it's impossible to know for sure that this is the answer, but I feel I'm on the right track.
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Post by Arun Nagrath on Oct 31, 2011 17:52:23 GMT
Hey that's interesting Nick, Did you ever get a skin lesion that resembles the bull's eye of a dart board. How long ago did you have any kind of suspicious skin lesion?
I believe that in the early stages this can be treated by a 2-4 week course of antibiotics. But I believe that once it has been there for a while and become chronic then you may need long-term antibiotics. Is that right?
I think the Heliocobacter treatment might not have eradicated borrelia spirochete since it is usually 1 or sometimes 2 weeks in duration whereas Lyme Disease requires 2-4 weeks treatment (longer if it has become chronic). How long did you take the antibiotics for helicobacter?
Nick, I hope this Lyme disease is in some way related to your odour condition and antibiotic treatment resolves both of these. But can you be sure that these 2 conditions are related?
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Post by grimey on Oct 20, 2012 7:36:42 GMT
i took doxycycline for a year for symptoms akin to lymes desease, gws the best ive ever felt was when on these meds. it was also the only time ive totally got rid of the BO. the BO has come back but not as bad its more controllable (slightly). i need to keep my digestive system clear which is not easy to do
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mona
Junior Member
"I'm just a regular person with an irregular life"
Posts: 62
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Post by mona on Nov 14, 2012 6:55:41 GMT
I also have worsening B.O. a minute or two after eating, maybe less. I think I have lyme disease anti_funguls did help me which lead me to believe I had candida but LYME DISEASE sounds MUCH MORE ACCURATE.. I always wondered WHY my b.o. got worse after/during meals! Now I know.. !!
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Post by Jdscarecrow on Dec 16, 2013 16:23:18 GMT
Hey guys I was diagnosed with Lyme after being but by a tick from my roommates dog in NYC in 2009 . I got the rash and was on Antibiotics within a couple weeks . Unfortunately I was only given a 2 week dose and it only temporarily took care of it. About a year ago Lyme and candida came back with a vengeance and I began to smell really bad like ammonia ( cat pee) . I think both the fungus and bacteria can cause this. If you know you have Lyme this is most likely the culprit of the smell . I ruined lots of clothes this year trying to clear it . I sure did smell something aweful for a while. Keep on keeping on JD
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