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Post by malory on Apr 21, 2018 8:34:55 GMT
According to the Genetic Alliance Workshop 'How To Campaign' of 19 April 2018 held in London, there are 4 main ways of effecting change through parliamentary channels (Your local MP can: Ask a parliamentary question; Sign an early day motions; Raise or participate in a debate; Tweet/Facebook to show their support).
Our former e-mails to MPs have done a good job of raising awareness generally. If every odour sufferer now writes a very brief letter (and/or e-mail) to his/her local MP and asks the local MP to raise a question, then maybe just one MP will actually do it! Busy MPs will be more likely to respond if we give them one simple, manageable task, which requires little effort/time on their part. Could everyone (in the next 2 months) send a question for their local MP to raise in Parliament regarding the testing crisis?
I think my first question will be:
To ask the Secretary of State for Health, whether his Department will take steps to establish a comprehensive, accurate and relevant test for metabolic malodour disorders such as Trimethylaminuria so that sufferers can be diagnosed and their human rights protected.
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Post by malory on May 16, 2018 21:39:55 GMT
There have been some very encouraging signs that our group's voices have reached several health ministers. This is a really good time for UK people to contact their local MPs and ask him/her to pose a question. The more people participate, the more likely it is we will have an impact.
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