|
Post by luckyhope on Apr 25, 2012 11:49:05 GMT
I was on the old boards. I made a thread about being diagnosed as delusional and if I should believe the doc. Well my most recent doctor said I had somatic delusions. So thats 2 docs that said it. After I was diagnosed I looked up what somatic delusions are. Here is a breif definition of delusional disorder: Delusional disorder refers to a condition associated with one or more nonbizarre delusions of thinking—such as expressing beliefs that occur in real life such as being poisoned, being stalked, being loved or deceived, or having an illness, provided no other symptoms of schizophrenia are exhibited. Themes of delusions may fall into the following types: erotomanic type (patient believes that a person, usually of higher social standing, is in love with the individual) grandiose type (patient believes that he has some great but unrecognized talent or insight, a special identity, knowledge, power, self-worth, or special relationship with someone famous or with God) jealous type (patient believes his partner has been unfaithful); persecutory type (patient believes he is being cheated, spied on, drugged, followed, slandered, or somehow mistreated) somatic type (patient believes he is experiencing physical sensations or bodily dysfunctions— such as foul odors or insects crawling on or under the skin—or is suffering from a general medical condition or defect) mixed type (characteristics of more than one of the above types, but no one theme dominates) My therapist does recognise I have bb. He said I should get a water pick . He thinks my prognosis is good. They put me on geodon lamictol and paxil. I still dont know if they are telling me the truth or not. Some days I believe the diagnosis other days I dont. What should I do? I also hear voices. But they say I am not schitzophrenic. Even though it runs in my fam and I hear voices and had hallucinations. SHould I believe my doctors? Have any of you been diagnosed with something like this so that doctors didnt have to tell you the truth?
|
|
|
Post by kat on May 13, 2012 10:13:07 GMT
I wish I was just delusional. But I think its pretty obvious whether you have the odour or not. If people are pulling away from you in disgust, saying "you smell...what smells...did you fart?", or you can smell it yourself, then you obviously have a body odour problem. You need to look at all your experiences in social situations and think of how people reacted to you and not just some mild sniffing and coughing around you. That will tell you whether your doctors are right or if you do have a delusional disorder. My doctor thought I had some heart problem that was affecting my brain and making me think I smelt bad. But no. For some reason the doctors office is so sterile and air conditioned and you are not in there for very long, that they just do not smell your odour. Then you go somewhere else like church, and everyone is gagging around you like they want to be anywhere else but next/behind you. good luck.
|
|
jo hanson
New Member
support chat ,SKUNKHUGS ON Skype
Posts: 20
|
Post by jo hanson on May 24, 2012 22:38:43 GMT
The worst thing possible probably is for a Doc to prescribe antipsych meds because he/she won't admit to odor. Now its 1 thing if odor is always mild and the patient is overreacting ,them maybe bringing down the anxiety level down is ideal with CBT . But the Doc should say that the odor is mild , Not deny it . And this is what happens . People deny it ,thinking they are saving our feelings(and their own because it too awkward for them too). While in reality many of us just want to hear it out loud so we can address it. One best way to get genuine reactions is from strangers . When i want to gauge my odor ,i gather bravery and talk to someone at a bus stop or in passing,a few inconsequential people . No matter how understanding they are , they often find it impossible to hide their initial reaction to a strong bb blast. those are the only reactions i pay attention to anymore, others are just speculation for me . hopemovo.com
|
|
|
Post by joanball on May 7, 2013 14:51:52 GMT
I was on the old boards. I made a thread about being diagnosed as delusional and if I should believe the doc. Well my most recent doctor said I had somatic delusions. So thats 2 docs that said it. After I was diagnosed I looked up what somatic delusions are. Here is a breif definition of delusional disorder: Delusional disorder refers to a condition associated with one or more nonbizarre delusions of thinking—such as expressing beliefs that occur in real life such as being poisoned, being stalked, being loved or deceived, or having an illness, provided no other symptoms of schizophrenia are exhibited. Themes of delusions may fall into the following types: erotomanic type (patient believes that a person, usually of higher social standing, is in love with the individual) grandiose type (patient believes that he has some great but unrecognized talent or insight, a special identity, knowledge, power, self-worth, or special relationship with someone famous or with God) jealous type (patient believes his partner has been unfaithful); persecutory type (patient believes he is being cheated, spied on, drugged, followed, slandered, or somehow mistreated) somatic type (patient believes he is experiencing physical sensations or bodily dysfunctions— such as foul odors or insects crawling on or under the skin—or is suffering from a general medical condition or defect) mixed type (characteristics of more than one of the above types, but no one theme dominates) My therapist does recognise I have bb. He said I should get a water pick ::). He thinks my prognosis is good. They put me on geodon lamictol and paxil. I still dont know if they are telling me the truth or not. Some days I believe the diagnosis other days I dont. What should I do? I also hear voices. But they say I am not schitzophrenic. Even though it runs in my fam and I hear voices and had hallucinations. SHould I believe my doctors? Have any of you been diagnosed with something like this so that doctors didnt have to tell you the truth?
|
|
|
Post by joanball on May 7, 2013 15:04:36 GMT
Hi, I have been described the same meds and also told I was delusional but I kept at it and got diagnosed with t.m.a.u but argording to them I'm still mental because they don't like being proved wrong.Severe anxiety can cause voices in your head and that's probably what you were suffering from being as they didn't take any notice when you were telling them you have to just keep pushing what you think is right and telling them because at the end of the day you know yourself better than anyone like I had to.Keep your chin up and fight for whats right for you
Stay strong and be blessed x
|
|
|
Post by P on May 8, 2013 3:48:26 GMT
I was also diagnosed with somatic delusions more for issues with body weight and sometimes my anxiety gets so bad I'm not in reality for instance believing the neighbors are watching me through my bedroom window with 2 curtains and blinds. I was prescribed invega and serolquel but I'm not going to take antipsychotics because of the risk of Tardive dyskinesia and all the other stuff. I also have terrible body odor and many people have mentioned it to me in many different locations. Throughout my life I've just been left alone a lot in my own head sometimes dwelling and dwelling on stuff which I think led to some psychotic symptoms. If you're hearing voices, that's something serious and you should consider what the doctor is telling you but read and be educated about your medications. I've told a few doctors about my concern about body odor (mostly because they were in genetic medicine or gyno and I thought they could help me) and a lot of them tell me they can't smell anything. but at work on the bus and my friends complain about the smell. I would even find it difficult to talk to many psychologists about this disorder as many of them will deny it. We as a community with this disorder need to find someone we can talk to about this odor about the frustrations it causes and start an organization in each major city. We cant suffer onour own there needs to be more education and support groups for us.
|
|
|
Post by luckyhope84 on Jul 1, 2013 3:49:15 GMT
I've had the belief that I smell for 7 yrs and I have yet to have any concrete proof that I smell. It started out with someone commenting about my breath and me getting obsessed about my breath. Then I thought I smelled after a while. I just got so obsessed with it I thought it. I now know I was going into schizo affective disorder. It started with the delusion and secluding myself and went into full blown hallucinations. I mostly have hallucinations delusions and depression but I did get manic once. I have no doubt my thoughts are that of a deluded mind because I can look back on when I thought I smelled the worst and had people(strangers) being close to me, and treating me with nothing but love and care. I didn't see it before because all I was concerned about was how I smell. When people got close to me I would hold my breath because I thought they would smell my breath through my nose. They would always ask me why I was acting the way I was and I wouldn't answer. I've been in the mental hospital 3 times and never had a soul say I smell.
People don't react to me the way they react to other people with a body odor issue. They don't cough sneeze sniffle or cover their noses. They come close to me instead of away from me. They sit next to me and hug me (even strangers hug me I don't know why). They stand close to me all the time(even more when I'm wearing perfume). Everything people do makes me think I don't smell but I would think they're doing it because they are trying to be nice. No one will tell me the truth except for me. But I was wrong. I was the one lying. The thing about these forums is they are great sources of information and what not but they aren't good for the mentally unstable. There really is a thing as delusions and I had it. I may smell but not outside the range of normal. I took a choline load test and I got well within normal range. Actually on the low side of normal. With my highest choline count being .064 and 1.75 is tmau.
I've had quite an ordeal with my mental problems and I wish people would be more aware about this disorder. There are too many people suffering alone with this and there is nothing wrong with them. It took me going out and changing my thinking to see the results I was looking for. Not dieting and changing my soap. I actually have a horrible diet full of alcohol and bad food. Purposely doing things that were no no's like eating eggs and seafood and not taking a bath for long drawn out periods of time.
|
|
|
Post by samboy on Jul 7, 2013 18:36:05 GMT
Hello, luckyhope84. Glad you are doing well. And good on you for seeing it for what it truly was. I suspect many members here have this problem as well. While chronic body odor is a reality for many sufferers here, it is not the case for all of us.
|
|
|
Post by Luckyhope on Jul 14, 2013 5:39:52 GMT
I wish it would get more of a conversation behind it. I've been looking for a place to let out all of these fears but I just can't find the right one. I do think more people have this disorder than you think. It's so easy to slip into. The thing is there are just communities for people that really do smell. Not one for people that think they do. I guess a mental health forum would be better but its embarrassing.
I remember hearing on one of these forums someone say something about he thinks people react more from far away then close up. That to me is a sign that he's overthinking what he thinks are reactions. People just aren't going to react more from far away. The smell gets stronger the closer you are to it. That's just logic. But before I would have believed it. I would have made up some excuse in my mind like the smell gets stronger in the air.
But that just shows how out of it some of the people are but they still believe they smell. I'm not saying its all in your heads. I'm just saying don't find it so hard to believe that there are people out there where its all in their heads. And the struggle for them is just as hard if not worse because they have so much fear and anxiety about it its all they can think about. I worry about it constantly. When people get close to me or have to stand in line next to me I get anxiety attacks. The thing is people don't see anything wrong with you so they get closer. It makes me feel better in the moment but then someone will walk by me and look at me. Or people will be talking to each other and I think they're talking about me. So I feel bad again. It a vicious cycle. I look at every little thing as a reaction.
|
|
|
Post by possiblehelp on Aug 9, 2013 22:46:23 GMT
luckyhope, you said that you were delusional, have you ever smelled anything when you go out to public places. Anyways I really believe I have tmau because my mom told me my grandpa used to worry about having a body odor but at the same time I think he was kind of delusional because he had this belief that bugs were crawling inside of his scalp and he had some paranoia issues but I still believe he might have had the disorder. But I don't think I'm delusional because I have smelled these things I haven't smelled them on myself but I smelled them in the environment. It usually happens 2 weeks before my cycle and is usually bad the few day before the onset and maybe a little bad during my cycle. I went out with my friends not too long ago and this horrible musty smell came out of the blue and people commented on it and I asked my friends if they smelled it and they said yeah. I asked them if it was me and they said it wasn't, but they don't understand because they just don't believe I could smell that way. They think I'm crazy and everytime I ask the question they get irritated. I went out with atleast 8 or 9 friends to this party and there were a whole bunch of people there, I was surrounded by people dancing to music and then that bad smell came out and some people didn't realize it and kept dancing actually I was the only one who noticed and I asked my friend if she smelled it and she said no and that I was acting crazy. But like 20 minutes later the smell came out again. There was at least over a 100 people there and that strong musty smell came out and filled the entire hallway area and that's when my friends finally picked up on the smell. I felt like running out of there right there but I was stuck and couldn't leave. I asked my friends if they smelled it and they said yeah with disgust. I whispered to my friends if it was me and they kept saying "I KNOW IT ISN'T YOU!! It's all in your head, it was that girl over there not you!!!" but I know it was me but they just don't believe it's me because when I ask if it's me, they smell me and say that I smell good like perfume and soap even when the smell comes out, it's like the smell isn't connected to my body or something. That night I had talk with my girlfriends when we got back home and they kept telling me it's all in my head and that I don't stink and that it was some girls at the party who stunk, but after all of my terrible experiences I just know it's me. It happens every time I go out. Their explanation is "You're gonna smell someone stinky when you go out because that's life. You can't claim someone else funk. Why do you want to stink? Why do you want to claim someone else body odor???" and I'm feeling like I'm going nuts because that night when we got back home to hang out all of them said I smell good. Even at the party during the smelly episode some hot guy came up to me and started hugging on me and said that I smelled sooooo good and his friends were with him and they all were flirting with me. I don't understand it. But I know it's not in my head because my brother went to school one day and he said everyone said he smelled like fish but he couldn't smell it. I smelled him and it was horrible I wanted to gag, the smell was disgusting and was embedded in his shirt. But he could not smell it. He said it never happened again. But if you put two and two together and think about how my mom said my grandfather said he thought he stunk and then my situation along with my brother it's obvious there's a problem. Anwyays the next day I went I home and I kept smelling this strong salami smell (I hate that smell) I asked if anyone was making sandwiches and they said no. So I went down to my friends house to sit on her porch with her and her brother was commenting on how his sister smells like gorilla but right after he said that it made me start thinking of smells and suddenly I started to smell dog feces. I told her something smelled of dog feces and she got offended because she knows I am afraid of smells so she thought I was insulting her but I know it's me and I wasn't insulting her. So after her brother left I went in the house with her and out of no where that same strong salami smell came back out out of the blue that I was smelling at home and she said "What the hell was that?" and I smelled it too, it smelled like about 80 people were waving stale salami around in a bag in our faces and then within seconds the smell disappeared, I told her it was me and that my body created that smell and said that I was crazy and that her son had opened the refrigerator a few minutes ago and that she had a sub in the fridge but I told her I smelled that same smell at home so I just started crying because it's like people don't believe me and I'll never get help. Either I ignore my problem and live my life stinking and having my reputation ruined or don't live my life stay home all day and never get married and have kids AND STINK. It's like damn if you do, damn if you don't. But I think I know where that salami smell came from (This was about a week or two before my period) I had ate chicken fingers cheese, ranch and crackers the day before and I smelled the chicken fingers and they sort of had a similar smell to that salami smell, so I guess that smell built up in my bloodstream and came out the next day. Anyways she doesn't believe me. But the crazy thing is is that I have two friends with odor problems. My other friend has smelled like fish numerous times, she also has bad breath and this is not a normal smell. She said she went out and this smell kept following her and she said one time when she was at work this huge fart smell filled the entire room but she said other people were saying they didn't smell anything. I wasn't there either. My other friends treat her wrong and talk about her behind her back and tell me not to invite her when we go out because they hate the way she smells and thinks it's her personal hygiene but I think she might have a disorder my parents even commented on how she smelled and told me to tell her to go home, but since I have a similar issue as her I believe that maybe it's not her at all and it's really me that is stinking and everyone just thinks it's her because maybe my smell only comes out when she's around? I don't know but it's driving me crazy. My cousin even talks about her and says she hates the way she smells and they truly don't believe I stink but they believe she does but I think me and her have the same problem because when I go out alone I smell these horrible things and people comment on the smells too and then I'll go somewhere else and smell the same thing so I know the smell is following me. But I just find it strange that both of us have the same problem. I also have a guy friend who told me when he gets constipated his body smells like rotten eggs. Maybe the disorder is caused by our environment? Or we caught something that made us come down with this. I'm not being delusional either guys this stuff is really happening to us. Please give me some feedback, thanks.
|
|
|
Post by possiblehelp on Aug 9, 2013 23:10:28 GMT
I now believe that the smell doesn't come out through my sweat or urine or saliva that's why I can hang out with my friends all day and nobody will say I stink because I do smell good, but it's a gas that's coming out of my body reason why the smell isn't sticking on me where they would know that IT IS me. Just like if someone passes gas, they can still smell good like soap or cologne/perfume but the smell won't stick to their body because it's a gas that floats away from the body so you'll never know who it is that stinks. Just like if someone farts they can move away from that area they farted in and blame it on someone else. So I think my problem isn't necessarily a "body odor" problem but "Smelly gas" problem. Even though I am not passing gas, I think the gas just comes out of my body especially before my cycle or during stress and the gas can smell like anything not just fart or something, but a bad smell in gas form. People with other forms of tmau,I guess have a smelly sweat or smelly saliva along with smelly gas, so I guess that's why some members here have said that people have bluntly told them they stink.
|
|
|
Post by luckyhope84 on Dec 8, 2013 20:14:55 GMT
Possible help... I think if you had tmau it would come out of your sweat. So you don't have tmau. I would believe what other people say. I would smell things too but it was part of my mental disorder. No one else would smell them. Only I would. IT was a hallucination. I've since got on the right meds and know without a shadow of a doubt that I don't smell. It was all in my mind. I believed it so strongly that I smelled things and everything.
Now I know if I take a bath every day I don't smell. I've even gone out without taking a bath that day when I spent the night out and nothing. People treat me the way they always have. I was just looking for reactions. Everything was a reaction. If someone breathed funny it was a reaction. If they coughed or sneezed it was a reaction. If they made a sound under their breath it was a reaction. Now I go by what they do. Do they stand or sit close to me? Do they seem relaxed around me? Do they hang around me? Do they rest on me? Hug me all the time? Those things mean more than a cough or breathing funny.
WHen you look for something you find it. But in my experience when something smells you get a visceral reaction. They pull back or look away. Cover their noses. things like that. You're problem is more about the worry of smelling not anyone actually doing anything to make you feel bullied. So get over the worry and you get over the smell.
|
|
|
Post by Mike on Dec 8, 2013 22:44:23 GMT
Perhaps in your case, it is the correct diagnosis. But I know in my case, it's not the correct one. People still move away and talk shit about me and drop (sometimes really blunt one) hints about the fact that I'm unclean and such. But yeah, if it's indeed what you have, then I'm glad it's working for you. But make no mistake, it's real with some of us and definitely not a product of our imagination.
|
|
|
Post by luckyhope on Dec 8, 2013 23:41:16 GMT
There's no doubt in my mind that some of you suffer from a body odor problem, but I think some also suffer from a mental disorder. And having a mental disorder can make it seem just as real as if you had a real body odor. So if you think you smell because of little things than you prob don't smell at all. Its hard to know if its all in your head or not. It took me 7 yrs to figure out that it was all mental. So believe me I know the stories of sufferers. But there are people like me out there too. I heard on this here forum of someone who thought their smell was stronger the further you got away from him. People didn't react when they were close to him but further away they would. That's delusional.
I think its bad advice to not believe your doctors and friends/family. I took that advice and was in the dark for 7 yrs because I believed that the only people that would know the truth is you guys. My doctors kept saying delusional and I didn't believe them because you all told me they would say its all in my head. Every little thing people did made me think I smell. FOr instance my sisters boyfriend said I smell bullshit when I brought up my odor. I immediately thought he meant something else. Was taking a hidden jab at me. When he wasn't. But I was so sensitive to anything smell or shit related I couldn't see the truth staring at me in front of my face.
I went to you all for support and got support but you could only tell me things from your point of view which usually ended with some people thinking I got reactions and others not. It left me confused and not comforted. I just want the people that question their body odor issues to know that there are other reasons they may be feeling the way they do. It may not be an odor problem at all. But for the people that know they have an odor its a very real condition and I feel your pain because I lived it for 7 yrs.
|
|
|
Post by saraliz on Feb 6, 2014 1:55:33 GMT
Possible help... I think if you had tmau it would come out of your sweat. So you don't have tmau. I would believe what other people say. I would smell things too but it was part of my mental disorder. No one else would smell them. Only I would. IT was a hallucination. I've since got on the right meds and know without a shadow of a doubt that I don't smell. It was all in my mind. I believed it so strongly that I smelled things and everything. Now I know if I take a bath every day I don't smell. I've even gone out without taking a bath that day when I spent the night out and nothing. People treat me the way they always have. I was just looking for reactions. Everything was a reaction. If someone breathed funny it was a reaction. If they coughed or sneezed it was a reaction. If they made a sound under their breath it was a reaction. Now I go by what they do. Do they stand or sit close to me? Do they seem relaxed around me? Do they hang around me? Do they rest on me? Hug me all the time? Those things mean more than a cough or breathing funny. WHen you look for something you find it. But in my experience when something smells you get a visceral reaction. They pull back or look away. Cover their noses. things like that. You're problem is more about the worry of smelling not anyone actually doing anything to make you feel bullied. So get over the worry and you get over the smell. Please tell me what kind of medication you're on ! I'm going through exact same thing !!! (((
|
|